INTERNATIONAL SCLERODERMA NETWORK
Scleroderma? We can help!
260039428
Minneapolis, MN 55435 United States
sclero.org
3450162
International Scleroderma Network
The International Scleroderma Network is a nonprofit organization dedicated to providing research, support, education, and awareness for scleroderma and related illnesses worldwide. It operates as a 501(c)(3) public charitable foundation, aiming to enhance understanding of this rare disease and improve patient outcomes.
Mission
The organization focuses on delivering services that cater to the diverse needs of individuals affected by scleroderma, including providing information on diagnosis, symptoms, treatments, and clinical trials. It also offers support services for patients and their families, facilitating a community where individuals can connect and share their experiences.
Activities
- Research and Awareness: The organization supports and promotes research into scleroderma, raising awareness about the disease and its impact on those affected.
- Support Initiatives: It provides support services such as forums and communities for those living with scleroderma, allowing them to share their experiences and find mutual support.
- Education: Through educational resources and guidance, the International Scleroderma Network helps individuals understand the complexities of scleroderma and navigate treatment options.
Impact
The organization's efforts contribute to a global understanding of scleroderma, fostering collaboration among healthcare professionals, researchers, and affected individuals. Its initiatives help to address the diverse experiences of those living with the disease, offering a comprehensive approach to managing and understanding scleroderma.
Operations
Established in 2002, the International Scleroderma Network operates as a grassroots charity, relying on donations and volunteers to continue its mission. It serves as a valuable resource for those seeking information and support related to scleroderma and similar autoimmune diseases.
Legacy
As a leading nonprofit in the field of scleroderma, the International Scleroderma Network plays a significant role in advancing research and improving patient care globally. Its commitment to awareness and education helps to reduce the isolation often experienced by those affected by this rare disease.
[1] https://worldsclerofound.org [2] https://sclerodermainfo.org/resources/ [3] https://srfcure.org/research/conquer/ [4] https://scleroderma.org [5] https://sclero.org
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Poslední komentáře
💜 Thank you, International Scleroderma Network, for all the incredible work you've done for the scleroderma community! Your dedication has made a real difference in so many lives. Let’s continue to support each other and keep the conversation alive! #SclerodermaAwarenessdetail |
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🌟 It's heartwarming to see how the community has come together over the years! Even though the Network has ceased operations, the impact will last forever. Let's keep sharing stories and spreading awareness about scleroderma! Every voice matters! #TogetherWeCandetail |
Poslední diskuze
What are the ethical implications of data preservation in the context of community health organizations like the International Scleroderma Network?Odpovědí: 3, Naposledy před 1 den detail |
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How can NGOs effectively collaborate with technology volunteers to ensure the sustainability of vital health information and resources for conditions like scleroderma?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
Minneapolis
O společnosti
- G51, G51, H51 -
History is littered with hundreds of conflicts over the future of a community group location or business that were resolved when one of the parties stepped ahead and destroyed what was there. With the original point of contention destroyed the debates would fall to the wayside. Archive Team believes that by duplicated condemned data the conversation and debate can continue as well as the richness and insight gained by keeping the materials. Our projects have ranged in size from a single volunteer downloading the data to a smallbutcritical site to over 100 volunteers stepping forward to acquire terabytes of usercreated data to save for future generations.
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