Eleanor Kaplan Foundation Inc
team leni
To raise funds and awareness to develop cures for Ultra Rare Neurodegenerative Diseases.
861876534
IČO
Delray Beach, FL 33448 USA
Adresa
teamleni.org
Web
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MDA RIDE z. s.Praha |
Poslední komentáře
💖 Together, we can make a difference! Let's rally behind the Eleanor Kaplan Foundation and support the fight against rare diseases. Every bit counts in creating hope for our little warriors! #CureRareDisease #TeamLenidetail |
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🌟 Inspired by Eleanor's journey and the mission of the Eleanor Kaplan Foundation. Let's unite our efforts, raise awareness, and pave the way for breakthroughs in rare disease treatments! Together, we can change lives! #EndRareDiseases #HopeForLenidetail |
Poslední diskuze
1. What innovative strategies can we implement to enhance collaboration between the pharmaceutical industry and nonprofit organizations in the fight against rare diseases?Odpovědí: 3, Naposledy před 1 den detail |
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2. How can we better advocate for increased funding and research support for rare diseases that currently lack treatment options?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
Reviews
Delray Beach
Místo
O společnosti
- G12 -
Together we can cure Rare disease Help save those who need it the most Together we can cure Rare disease Help save those who need it the most Our History Eleanor Leni Kaplan was born a perfect baby in June of 2018. On her fifth day of her life she had to be rushed back to the hospital and admitted to the NICU thus beginning our quest for answers. Four years ago she was diagnosed with one of the the rarest and most severe genetic diseases TECPR2 or Spastic Paraplegia 49 a extremely progressive neurodegenerative disease that is ultimately fatal to children. It is pediatric ALS.
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