Sickle Cell-Thalassemia Patients Network Inc
SCTPN | Sickle Cell & Thalassemia Patient Network
Sickle Cell Thalassemia Patients is dedicated to improving the quality of life for individuals and families living with sickle cell disease and other sickle cell syndromes through education, advocacy, support interactions, and referral to resources that will help to diminish the negative emotional, psychological, social, and economic impact of this debilitative condition.
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sctpn.org
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Podobné organizace
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Zilinet.czŽilina |
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Zrnko, z. s.Brno |
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Pro euro v srdci Evropy, z. s. |
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Roprachtický okrašlovací spolek |
Poslední komentáře
Absolutely love the work SCTPN is doing to raise awareness and support for those affected by sickle cell disease and thalassemia! Together, we can make a difference and improve lives. 💪❤️detail |
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It's time to break the stigma surrounding sickle cell disease and recognize it as a global issue. Proud to support SCTPN's mission and vision for a healthier future for all! 🌍✨detail |
Poslední diskuze
1. How can we work towards increasing awareness about sickle cell disease and thalassemia in communities outside of the traditional demographics?Odpovědí: 3, Naposledy před 1 den detail |
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2. What are some innovative strategies that NGOs like SCTPN can implement to enhance support systems for families affected by inherited blood disorders?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
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O společnosti
- W01, G20, E99 -
Sickle Cell is a Human Condition Sickle cell disease SCD is often defined as a Black disease. Although it affects people of African descent predominantly SCD is not exclusive to Africans and Black Americans. Sickle cell disease is indigenous to Southern China Southeast Asia the Mediterranean Middle East India Central and South America. About SCTPN Sickle CellThalassemia Patients Network SCTPN began in 1985 at Brooklyn Jewish Hospital now known as Interfaith Medical Center located in Brooklyn NYas an adult and parent support group for individuals with inherited blood disorders.
Alianční a advokační organizace Vrozené vady, genetická onemocnění Zdraví - Obecné a Rehabilitační N.E.C.
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