ABL+ Foundation | Supporting Rare Hypolipidemia Diseases
Abetalipoproteinemia and Related Disorders Foundation is a non-profit, volunteer organization that provides guidance on needed scientific research, diagnosis, and management of abetalipoproteinemia and related hypolipidemias. Abetalipoproteinemia and Related Disorders Foundation is a non-profit, volunteer organization that provides guidance on needed scientific research, diagnosis, and management of abetalipoproteinemia and related hypolipidemias, such as chylomicron retention disease and familial hypobetalipoproteinemia. Because these are very rare illnesses, there is limited research and no cure. Patients can sometimes go undiagnosed for years, and insurance companies may not recognize treatments.
842454179
IČO
Woodbury, NY 11797 USA
Adresa
ablfoundation.org
Web
ablplusfoundation
Facebook (48)
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Poslední komentáře
💚 Loving the awareness you’re raising for those with rare disorders! Every story shared brings hope and support to many. Let’s continue to spread the word! #ABLFoundation #RareDiseasesdetail |
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👏 Absolutely inspired by Paul's journey and the creation of the ABL Foundation! Together, we can make a difference for those affected by abetalipoproteinemia and related disorders. Keep up the amazing work! 🌟 #SupportRareDiseasesdetail |
Poslední diskuze
- What are some innovative ways that NGOs can raise awareness about rare diseases like Abetalipoproteinemia and engage the community in supporting research efforts?Odpovědí: 3, Naposledy před 1 den detail |
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- How can the ABL Foundation enhance its support for individuals living with hypolipidemia diseases, and what additional resources do you think are necessary for effective management and treatment?Odpovědí: 3, Naposledy před 1 den detail |
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O společnosti
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ABL Foundation supports individuals with ultrarare hypolipidemia diseases Find Resources Donate Patient Stories In 1965 the term rare diseases was almost unheard of in the United States. Born that year Paul was diagnosed with Abetalipoproteinemia ABL a rare genetic disorder. I lead the life I want to live. If you take anything away from my story please realize that ABL and the other illnesses the ABL Foundation is concerned with are all treatable with proper diet and vitamins.
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