Home | Utah Prader-Willi Syndrome Association (UPWSA)
The mission of the Utah Prader-Willi Syndrome Association is to enhance the lives of individuals and families affected by Prader-Willi syndrome.
870468350
IČO
1988
Založeno
SALT LAKE CTY , UT 84108 USA
Adresa
upwsa.org
Web
upwsa
Facebook (1500)
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Asociace lodní třídy 29er a 49er, z.s. |
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BLACK SPIDER z.s. |
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Společně pro Javorník, z. s. |
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Sport pro každého, z.s. |
Podobně sociální sítě (1500)
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Poslední komentáře
❤️ Thank you, UPWSA, for all the incredible support you provide to families affected by PWS! Your dedication makes such a difference in our community! 🙌detail |
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Just made a donation to UPWSA! Let’s help bring more resources and joy to kids with PWS. Together, we can make a positive impact! 🌟detail |
Poslední diskuze
1. How can community engagement initiatives improve the quality of life for families affected by Prader-Willi Syndrome?Odpovědí: 3, Naposledy před 1 den detail |
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2. What role do educational resources play in helping caregivers better understand and manage the complexities of Prader-Willi Syndrome?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
100
Volunteer
4.5
Reviews
SALT LAKE CTY
Místo
O společnosti
- 435, B99 -
HOME WHAT IS PWS ABOUT US RESOURCES RESPITE TRAINING TEAM DONATE EVENTS BLOG CONTACT More What is PWS. PraderWilli syndrome PWS is a complex genetic disorder resulting from abnormality on the 15th chromosome. PWS causes low muscle tone short stature if not treated with growth hormone cognitive deficits problem behaviors and most notable a chronic feeling of hunger which when coupled with a metabolism. What We Do UPWSA is a 501c3 nonprofit organization providing support to individuals diagnosed with PWS their families communities and care providers.
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