Many children are living with a rare disease. The complex challenges facing these children and families deserve attention and demand innovative treatment to meet unmet medical needs. However, research in this field is insufficient. The Children’s Rare Disease Organization, Inc. (the Organization) was created in order to fund research of rare diseases impacting children in an effort to find a cure or treatment. The organization hopes to promote research of rare children’s diseases and fund research labs and organizations, that focus on rare children’s diseases. Priority will be those challenging diseases with no underlying cause identified. Research progress in these kinds of diseases is extremely behind in the scientific field because of their complexity and unknown causes.