The MFDM Foundation
The MFDM Foundation is a 501(c)(3) public charity that supports conferences related to MFDM
933443155
IČO
Loveland, OH 45140 United States
Adresa
mfdmfoundation.org
Web
MFDMEFTUD2
Facebook (449)
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Novinky
Poslední komentáře
What an incredible journey! Thank you, Britt, for creating a space where families can connect and support each other. Together, we're stronger! 💙 #MFDMfoundationdetail |
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So proud of the MFDM Foundation and all the amazing work you do for the community! Let’s keep the momentum going and continue to raise awareness about MFDM. 🌍✨ #SupportMFDMdetail |
Poslední diskuze
1. What are some effective fundraising strategies that NGOs like the MFDM Foundation can implement to support ongoing medical conferences for families affected by rare conditions?Odpovědí: 3, Naposledy před 1 den detail |
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2. How can online support groups evolve to provide better resources and connections for families dealing with the emotional challenges of rare conditions like MFDM?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
Reviews
Loveland
Místo
O společnosti
- E60 -
The MFDM Foundation The MFDM Foundation The MFDM Foundation About The MFDM Foundation Our History In2015Brittthe motherof achild diagnosed with MandibulofacialDysostosiswith MicrocephalyMFDM felt isolated and longedfor community andconnectionwith otherfamilies who were affected by the samerarecondition. Thisdrove her tostart the MFDMsupportgroup onlineforothers to find answers and belonging. At that time only sixty known casesof MFDM weredocumented and Britt found her only link was in Australia. Eventuallyfourothers familiesjoinedand then theMFDM familygroup began to grow.
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