Labrune Syndrome - The LCC Foundation
The LCC Foundation’s MISSION is to help families across the United States and beyond diagnosed with Leukoencephalopathy with Brain Calcifications and Cysts (LCC) by giving them the resources they need to fight this rare and devastating disease. We advocate funding research efforts that will identify new treatments, therapies, and ultimately a cure for LCC. We seek to raise awareness of LCC thus increasing the probability of earlier diagnosis and treatment.
881908603
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Lake St Louis, MO 63367 USA
Adresa
thelccfoundation.org
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Poslední komentáře
💙 Thank you LCC Foundation for all the amazing work you do to support families affected by LCC! Together, we can raise awareness and bring hope to those in need! #LCCAwarenessdetail |
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🌟 March 24th is a day to unite and share our stories! Let’s spread the word about LCCLabrune Syndrome and support the incredible families dealing with this challenge. Every voice matters! #LCCFoundation #HopeForLCCdetail |
Poslední diskuze
What are some effective strategies we can use to raise awareness for LCCLabrune Syndrome on social media, especially leading up to Awareness Day on March 24th?Odpovědí: 3, Naposledy před 1 den detail |
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How can we support families affected by LCCLabrune Syndrome in navigating the challenges of diagnosis and treatment, given the limited research and resources available?Odpovědí: 3, Naposledy před 1 den detail |
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Lake St Louis
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O společnosti
- 636, G12 -
Leukoencephalopathy with Calcifications and Cysts LCCLabrune Syndrome Welcome to the LCC Foundation Have you or someone you love been diagnosed with Leukoencephalopathy with calcifications and cysts LCC or Labrune Syndrome. You are in the right place. You are not alone and there is hope. CFC 22895 Pledging begins in September View our GuideStarCandid Profile Introducing the Official LCCLabrune Syndrome Awareness Day March 24th.
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