Alexander's Way Research Fund Inc
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We promote the development of a treatment or cure for the rare genetic disease known as myofibrillar myopathy 6, (MFM6). This disease is a severe form of muscular dystrophy which progresses rapidly, and is fatal to children and adolescents. We fund research and encourage collaboration among scientists who are working on this disease. We are confident that a treatment is achievable. It is only a question of time. But, it is urgent for the affected children that a cure be found as soon as possible.
814159597
IČO
Sheffield, MA 01257 USA
Adresa
alexandersway.org
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MDA RIDE z. s.Praha |
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Nadační fond SrdcePraha |
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NÁBOR HRDINŮ, z. s. |
Poslední komentáře
Your dedication to finding a cure for MFM6 is truly inspiring! Together, we can support the scientists and researchers making a difference in the lives of those affected. 💪❤️detail |
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It's heartwarming to see organizations like Alexander's Way working tirelessly for children and adults battling neuromuscular diseases. Let's all contribute and help accelerate research towards a cure! 🌟detail |
Poslední diskuze
1. How can international collaboration among scientists, researchers, and patient advocacy groups be further strengthened to enhance the speed of research and treatment development for neuromuscular diseases like Bag3 myofibrillar myopathy?Odpovědí: 3, Naposledy před 1 den detail |
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2. What role do public contributions and fundraising initiatives play in supporting innovative research projects within nonprofit organizations focused on rare diseases?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
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Sheffield
Místo
O společnosti
- H12 -
Alexander39s Way Research Fund Inc A 501 c3 approved charity contributions are tax deductible Alexander ZahGreenspan MISSION STATEMENT Alexander39s Way Research Fund is a nonprofit charitable organization that promotes international collaboration among scientists researchers and patient advocacy groups to speed up research development and delivery of treatments for children and adults affected by Bag3 myofibrillar myopathy MFM6 and other neuromuscular diseases. Marco Vignale Alexander ZahGreenspan We depend on your contributions to fund advances in science with the aim of creating a cure. April 2020 New Research Alexanders Way is proud to be supporting the work of Dr. Igor F.
Shromažďování finančních prostředků a/nebo distribuce finančních prostředků.
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