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Our Board Our Ambassadors Our Partners Our Story When Kelly Ranallo and her husband George lost their daughter Katie to a rare condition they felt their world closing in around them. After receiving the news of yet another rare diagnosis affecting their other daughter Kelly and George began their rare journey. In navigating their daughters Turners Syndrome diagnosis Kelly began to conceive of an organization where individuals families physicians researchers and community partners would come together to share ideas overcome the unique challenges and help reduce the isolation of living with a rare disease in Kansas City thats when RareKC was born. Mission RareKCs mission is to drive innovation in the diagnosis care and treatment of rare diseases by connecting and inspiring our community.