Channeling Hope Foundation
Channeling Hope Foundation
932536735
IČO
San Antonio, TX 78209 United States
Adresa
channelinghope.org
Web
Podobné organizace
U R Our Hope |
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Pathways Corp |
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Trpm3 Foundation |
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Rare-X |
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Ctx Alliance NFP |
Podobné organizace global
PTEN UK AND IRELAND PATIENT GROUP |
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RARE AUTOINFLAMMATORY CONDITIONS COMMUNITY - UK (RACC - UK) |
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FORGOTTEN PATIENTS, OVERLOOKED DISEASES |
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CANADIAN ORGANIZATION FOR RARE DISORDERS (CORD) |
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Paediatrio Ltd |
Více Výzkum vrozených vad a genetických onemocnění
Poslední komentáře
Incredible work, Channeling Hope Foundation! Your dedication to advancing care for families affected by NALCN-related disorders is truly inspiring. Together, we can make a difference! 💙✨detail |
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So proud to see the launch of the RareX Registry! This is a huge step towards understanding NALCN-related disorders better. Let’s all participate and support this important cause! 🙌💪detail |
Poslední diskuze
- How can we better engage families and researchers to participate in the RareX Registry for NALCN-related disorders?Odpovědí: 3, Naposledy před 1 den detail |
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- What strategies can the Channeling Hope Foundation implement to raise awareness and support for families affected by NALCN-related disorders?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
Reviews
San Antonio
Místo
O společnosti
- H20 -
Channeling Hope Foundation A community of researchers and families driven to advance care and develop treatments for those affected by NALCNrelated disorders. NALCN UNC80 UNC79 FAM155 Patient Families We Need Your Help. Help Us Make a Difference Participate in Our Patient SurveyChanneling Hope submitted an application for a funded natural history study through Citizen. This study aims to collect analyze and deidentify medical records from over 50 patients.
Výzkum vrozených vad a genetických onemocnění
23 Vacancy
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