Sickle Cell Thalassemia Patients Network
SCTPN | Sickle Cell & Thalassemia Patient Network
To improving the quality of life for individuals and families living with sickle cell disease and other inherited blood disorders.
113106037
IČO
1992
Založeno
Brooklyn, NY 11213-2617 USA
Adresa
sctpn.net
Web
Podobné organizace
AS ONE FOUNDATION |
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Sickle Cell Disease Association of America, Inc. |
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Ohio Sickle Cell Health Association Inc |
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Sickle Cell Association of Houston, Inc, |
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Sickle Cell-Thalassemia Patients Network Inc |
Poslední komentáře
💙 Such an important mission! Let's unite to raise awareness and support for those affected by sickle cell disease and thalassemia. Together, we can make a real difference! #SCTPN #SickleCellAwarenessdetail |
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🌍 Love the vision of a world where everyone has access to proper care and support! Proud to stand with SCTPN in this important journey towards compassion and understanding for all communities impacted. #BoundarylessWellness #ThalassemiaSupportdetail |
Poslední diskuze
1. How can we raise global awareness about sickle cell disease and thalassemia in regions where it is less recognized, particularly among non-African populations?Odpovědí: 3, Naposledy před 1 den detail |
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2. What innovative approaches can the Sickle Cell Thalassemia Patients Network implement to advocate for better healthcare policies and access to treatments for individuals affected by these disorders?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
12
Employee
25
Volunteer
4.5
Reviews
Brooklyn
Místo
O společnosti
- 203, E99, G20, E01 -
Sickle Cell is a Human Condition Sickle cell disease SCD is often defined as a Black disease. Although it affects people of African descent predominantly SCD is not exclusive to Africans and Black Americans. Sickle cell disease is indigenous to Southern China Southeast Asia the Mediterranean Middle East India Central and South America. About SCTPN Sickle CellThalassemia Patients Network SCTPN began in 1989 at Brooklyn Jewish Hospital now known as Interfaith Medical Center located in Brooklyn NYas an adult and parent support group for individuals with inherited blood disorders.
Zdraví - Obecné a Rehabilitační N.E.C. Vrozené vady, genetická onemocnění Alianční/advokační organizace
23 Vacancy
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