Skraban-Deardorff Syndrome Foundation
Skraban-Deardorff Syndrome Foundation | SKDEAS
The Skraban-Deardorff Syndrome Foundation has been formed by parents and medical professionals worldwide to foster relationships and organize resources to benefit individuals with Skraban-Deardorff Syndrome. Our goal is to raise funds for research, promote public awareness, and align scientists, patients, parents, clinicians, government agencies, pharmaceutical companies and other organizations dedicated to treating people with Skraban-Deardorff Syndrome and related diseases.
882790552
IČO
Indian Trail, NC 28079 USA
Adresa
skdeas.org
Web
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Novinky
Poslední komentáře
💖 So inspired by the work you all are doing! Together, we can make a difference in the lives of those affected by Skraban-Deardorff Syndrome. Let's keep spreading awareness! #Hope #SupportSKDEASdetail |
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👏 Huge shoutout to the Skraban-Deardorff Syndrome Foundation for paving the way towards a brighter future! Every donation counts and brings us closer to the answers families need. Keep up the amazing work! #TogetherWeCandetail |
Poslední diskuze
1. What innovative fundraising strategies have you found effective in supporting rare disease foundations like the Skraban-Deardorff Syndrome Foundation?Odpovědí: 3, Naposledy před 1 den detail |
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2. How can we better raise awareness about Skraban-Deardorff Syndrome within the medical community to ensure early diagnosis and intervention?Odpovědí: 3, Naposledy před 1 den detail |
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Indian Trail
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O společnosti
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About Families Events Connect with Us Shop Ways to Give More ADVANCING THE SCIENCE. SMILES INCLUDED. Newly Diagnosed Start Here Welcome Help Pave the Way to a Brighter Future. Want to make a gift to help fund the important research that is necessary to help this incredible cause.
Vrozené vady, genetická onemocnění
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