SLC6A1 CONNECT
Homepage - SLC6A1 Connect
831415567
IČO
2018
Založeno
FRISCO, TX 75034
Adresa
slc6a1connect.org
Web
Podobné organizace
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Podobné organizace global
AMY AND FRIENDS |
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LYNCH SYNDROME UK |
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SHINE21 |
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Parents Of Children With Special Needs Inc. |
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Paediatrio Ltd |
Více Výzkum specificky pojmenovaných nemocí
End Duchenne z.s.Horní Branná |
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Pomáhej SRDCEM, z.s.Chodov |
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Život bez střeva, z.s.Praha |
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České ILCO, z.s.Praha |
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FIT-ILCO Praha, z.s.Praha |
Novinky
Poslední komentáře
💙 Such an important cause! Thank you for shining a light on SLC6A1 and the families impacted by this rare condition. Let's rally together to support research efforts and bring hope to those who need it most! #SLC6A1Connectdetail |
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🌟 Every small effort counts! I'm inspired by Amber and Mark's dedication. Let’s help raise awareness and funds for gene therapy research so that every child with SLC6A1 can have a brighter future. Together, we can make a difference! #CureSLC6A1detail |
Poslední diskuze
1. What strategies can we implement to raise awareness and engage the public in supporting research for rare diseases like SLC6A1?Odpovědí: 3, Naposledy před 1 den detail |
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2. How can we leverage partnerships with tech companies to develop innovative solutions for advancing gene therapy research for SLC6A1?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
1
Employee
200
Volunteer
4.5
Reviews
FRISCO
Místo
O společnosti
- H80 -
People Magazine Exclusive Milestones for Maxwell What if your child was diagnosed with a disease so rare it didnt have a name. What is SLC6A1 Connect. SLC6A1 is a rare neurological condition in small children that causes seizures severe movement and speech disorders and intellectual disability. SLC6A1 Connect is a patient advocacy group dedicated to improving the lives of children and families affected by SLC6A1.
Výzkum specificky pojmenovaných nemocí
23 Vacancy
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