HOPE FOR HARVEY FOUNDATION INC
HOPE for Harvey Foundation
882652347
AUSTIN, TX 78731
hopeforharvey.org
Podobné organizace
U R Our Hope |
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Hope4Harper |
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Eleanor Kaplan Foundation Inc |
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SHINE Syndrome Foundation Inc |
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Dlg4 Research Fund |
Podobné organizace global
ARTHUR'S QUEST |
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CURE CLCN4 LTD |
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CASK RESEARCH FOUNDATION |
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CURE DHDDS |
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FOUNDATION FOR PRADER-WILLI RESEARCH CANADA |
Více Shromažďování finančních prostředků a/nebo distribuce finančních prostředků.
MDA RIDE z. s.Praha |
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Nadační fond SrdcePraha |
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NÁBOR HRDINŮ, z. s. |
Novinky
Poslední komentáře
What an incredible initiative! I'm excited to support the 4th Annual Hope for Harvey Golf Tournament and help raise awareness for DLG4 and other rare genetic disorders. Together, we can create hope and change lives! ⛳💙detail |
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Just registered for the tournament! Can't wait to see everyone come together for such an important cause. Let's keep spreading awareness and making a difference for Harvey and so many others! 🙌🌟detail |
Poslední diskuze
1. How can community events like the annual golf tournament raise awareness and funds for rare genetic disorders such as DLG4?Odpovědí: 3, Naposledy před 1 den detail |
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2. What are some innovative strategies for increasing research funding and legislative support for early detection and treatment of rare genetic diseases?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
15
4.5
AUSTIN
O společnosti
- H12 -
Register for the 4th Annual Hope for Harvey Golf Tournament on 882025. Welcome to the HOPE for Harvey Foundation for DLG4 Helping Overcome PSD95 Errors for the DLG4 Community Welcome to the HOPE for Harvey Foundation for DLG4 Helping Overcome PSD95 Errors for the DLG4 Community Our Mission To further research and create translational medicine and treatment options that create a better quality of life for DLG4 patients. In the longterm we hope our efforts will go beyond DLG4 and help increase research and legislation in this field for early detection and treatment of all rare genetic disorders. 25MM 25MM 25MM Americans affected by rare genetic diseases like DLG4 10K 25MM 25MM identified genetic disorders 5 25MM 5 of disorders have an FDAapproved treatment Harveyx27s Story In March of 2020 we gave birth to our second child Harvey.
Shromažďování finančních prostředků a/nebo distribuce finančních prostředků.
