THE CALLIOPE JOY FOUNDATION
The Calliope Joy Foundation | Fighting Leukodystrophy
901005140
IČO
2013
Založeno
BALA CYNWYD, PA 19004
Adresa
thecalliopejoyfoundation.org
Web
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Poslední komentáře
What incredible news! 💖 A huge congratulations to The Calliope Joy Foundation for reaching such a monumental milestone. Your hard work and dedication have given hope to so many families. Together, we're making a difference! 🌟detail |
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Feeling so inspired by the amazing progress in MLD treatment! 🙌 Thank you, Calliope Joy Foundation, for all you do. The fight against leukodystrophies is far from over, but this is such a huge step forward! Let's keep the momentum going! 💪💙detail |
Poslední diskuze
1. How can The Calliope Joy Foundation leverage the recent FDA approval of gene therapy for MLD to enhance awareness and educational outreach within the leukodystrophy community?Odpovědí: 3, Naposledy před 1 den detail |
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2. In what ways can we engage families affected by leukodystrophy during the foundation's pause in operations to ensure they feel supported and informed about new developments in research and treatment?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
2
Employee
4.5
Reviews
BALA CYNWYD
Místo
O společnosti
- G40 -
Mission Contact More Dear Friends and Supporters I am writing to you with a heart full of gratitude and appreciation. When we founded The Calliope Joy Foundation in 2013 our mission was to drive awareness fund research and support families affected by leukodystrophy. Thanks to your unwavering generosity and advocacy we have seen what once seemed impossible become a reality. With this years FDA approval of gene therapy treatment for Cals disease metachromatic leukodystrophy MLD.
Nemoci specifických orgánů
23 Vacancy
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