SPOONBILL FOUNDATION
Finding a solution for PKAN | Spoonbill Foundation
815080532
IČO
2017
Založeno
Portland, OR 97209
Adresa
spoonbillfoundation.org
Web
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Poslední komentáře
🌟 Amazing work, Spoonbill Foundation! Your dedication to finding solutions for PKAN is truly inspiring. Together, we can make a difference! 💪❤️detail |
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👏 Huge shoutout to the Spoonbill Foundation for your relentless pursuit of therapeutics for PKAN! The commitment to the community shines through. Let’s keep pushing forward! 🌍✨detail |
Poslední diskuze
1. What innovative strategies can the Spoonbill Foundation implement to enhance collaboration with the global PKAN community in driving research and developing therapies?Odpovědí: 3, Naposledy před 1 den detail |
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2. How can we effectively raise awareness and support for PKAN and NBIA disorders within the broader healthcare community to accelerate progress towards therapeutics?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
2
Volunteer
4.5
Reviews
Portland
Místo
O společnosti
- H19 -
Finding a solution for PKAN Spoonbill Foundation and our sister organization Stichting Lepelaarwere founded with the goal to discover develop and deliver therapeutics for PKAN and all NBIA disorders in partnership with the NBIA community as swiftly as possible and at the lowest cost. We know PKAN. For 26 years we have cared for hundreds of people with PKAN hunted and found the causative gene discovered key pathologic and biochemical features of the disease engineered the best animal disease models and relentlessly pursued rational therapeutics with urgency and purpose. We are global leaders with a strong connection to the PKAN family community worldwide.
Nepeněžní podpora j. n. (jiné než specifikované)
23 Vacancy
More Detail
