CGD Association of America Inc

Overview

The CGD Association of America Inc (CGDAA) is a 501(c)(3) non-profit organization founded in 2019. It is dedicated to advocating for individuals affected by Chronic Granulomatous Disease (CGD), an inherited immunodeficiency disorder characterized by recurrent infections. The organization provides support to patients, their families, and X-linked female carriers of CGD.

Mission and Activities

CGDAA focuses on raising awareness, promoting medical research, and offering educational resources related to CGD. The organization hosts online events and publishes a monthly newsletter to foster a community among those affected by the disease. It has established a substantial database of patients and physicians, enabling IRB-approved research studies and surveys.

Financial Information

In recent years, CGDAA has reported contributions as its primary source of revenue. For instance, in 2023, the organization received $101,000 in contributions, with total assets valued at approximately $57,100. The organization operates with minimal expenses, focusing its resources on research and community support.

Research and Grants

CGDAA supports medical research by funding grants. Notably, it has provided a $25,000 grant to the Primary Immune Deficiency Consortium to investigate health issues affecting female X-linked carriers of CGD and post-transplant outcomes for patients.

Leadership

Felicia Morton, a long-time advocate for the CGD community and an X-linked carrier herself, founded and serves as the Executive Director of CGDAA. Her leadership includes roles as a liaison for patient advocacy groups within major research networks.

[1] https://projects.propublica.org/nonprofits/organizations/843243036 [2] https://rarediseases.org/organizations/chronic-granulomatous-disease-association-inc/ [3] https://cgdaa.org/who-we-are-1 [4] http://www.cgdassociation.org [5] https://www.cgdconnections.com/support-and-resources/cgd-events