Hope for Javier
262346544
IČO
East Setauket, NY 11733
Adresa
hopeforjavier.org
Web
Podobné organizace
CureDuchenne |
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Suneel Research Foundation |
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THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC |
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Ryan's Quest |
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Kindness Over Muscular Dystrophy Inc |
Podobné organizace global
THE DUCHENNE RESEARCH FUND |
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DUCHENNE UK |
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JOINING JACK |
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CHASING CONNOR'S CURE |
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The Gillin Boys Foundation Muscular Dystrophy Awareness Warrnambool Inc |
Více z East Setauket
Baštecké běhny, z.s. |
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Curling Club Bastones, z.s. |
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European Chinese Culture & Exchange Associaton z.s. |
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Felices, z.s. |
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HC TNP PRAHA, z.s. |
Více Sbírka peněz a/nebo distribuce fondů.
MDA RIDE z. s.Praha |
Poslední komentáře
So proud of Hope For Javier Inc for making such a profound impact in the lives of boys with DMD! 💙 Your partnership with Stony Brook Children's Hospital is a game changer! Thank you for fighting for better care options and a brighter future! 🙌detail |
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Incredible work being done to transform care for boys with Duchenne muscular dystrophy! It’s inspiring to see such dedication and collaboration driving equitable health outcomes. Together, we can make a difference! 🌟 #HopeForJavierdetail |
Poslední diskuze
What innovative fundraising strategies can NGOs like Hope For Javier Inc. employ to support research and development for Duchenne muscular dystrophy treatments?Odpovědí: 3, Naposledy před 1 den detail |
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How can we ensure equitable access to quality care and clinical trials for all boys with Duchenne muscular dystrophy, regardless of their socioeconomic or geographic circumstances?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
Reviews
East Setauket
Místo
O společnosti
- G12 -
MISSION Dedicated to changing the predicted outcome for all boys with Duchenne muscular dystrophy Transforming Care Studies have proven that access to multidisciplinary care adds on average TEN YEARS to DMD boys life expectancy. The care landscape has advanced dramatically in the past 35 years but not all advances impact equally. Hope for Javier partnered with STONY BROOK CHILDRENS HOSPITALto change that by creating a comprehensive care model for this patient population. Stony Brook Childrens Hospital is now a Certified Duchenne Care Center.
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