PROTEUS SYNDROME FOUNDATION UK
Proteus Syndrome Foundation - Support and Education
1077796
1999
TN39 5EJ
proteus-syndrome.org
Proteus Syndrome Foundation UK
The Proteus Syndrome Foundation UK is a non-profit organization dedicated to supporting individuals and families affected by Proteus Syndrome. Established as a registered charity in the United Kingdom, it operates under the charity number 1077796. The foundation focuses on several key activities:
Relief and Support
The primary goal of the Proteus Syndrome Foundation UK is to provide relief to individuals affected by Proteus Syndrome and their families and carers. This includes offering support and resources to help manage the condition.
Public Education
The organization is committed to advancing public education about Proteus Syndrome. By disseminating accurate information, it aims to increase awareness and understanding of this rare condition among the general public.
Research Promotion
A significant aspect of the foundation's work involves promoting research into the causes and treatments of Proteus Syndrome. This includes ensuring that research findings are published and accessible, helping to advance medical knowledge and improve care options for those affected.
Activities and Spending
In its financial activities, the charity allocates resources to achieve these goals, with recent annual income and expenditure figures indicating efficient management of its funds. The charity's activities and financial management are overseen by a small board of trustees, ensuring that its mission is fulfilled effectively.
Scope and Impact
While the Proteus Syndrome Foundation UK operates at a national level within the UK, its impact extends beyond national borders through its contribution to global research and awareness efforts. By collaborating with other organizations and medical professionals, it plays a vital role in addressing the needs of those affected by Proteus Syndrome worldwide.
[1] http://www.proteus-syndrome.org [2] https://www.orpha.net/en/patient-organisations/patient/68459?name= [3] https://register-of-charities.charitycommission.gov.uk/charity-details/?regId=1077796&subId=0 [4] https://www.nhs.uk/services/service-directory/proteus-syndrome-foundation/N10501773 [5] https://rarediseases.org/organizations/proteus-syndrome-foundation/
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Více Nemoci, poruchy a lékařské disciplíny jinde neuvedené.
Novinky
Poslední komentáře
So grateful for the amazing work the Proteus Syndrome Foundation is doing! Together, we can spread awareness and support for families and individuals affected by this condition. 💙 #ProteusSyndrome #SupportEachOtherdetail |
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Just made a donation to the Proteus Syndrome Foundation! Every little bit helps in promoting research and providing support for those affected. Let's make a difference! 🙌 #Donate #ChangeLivesdetail |
Poslední diskuze
- How can we improve awareness and understanding of Proteus Syndrome within medical communities and the general public?Odpovědí: 3, Naposledy před 1 den detail |
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- What role do family camps, like the Proteus Family Sunshine Camp, play in supporting families affected by Proteus Syndrome and fostering a sense of community?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
TN39 5EJ
O společnosti
- G99, E99, H99 -
Proteus Syndrome Foundation International Proteus Family Sunshine Camp Proteus Syndrome Foundation AIM Inhibitor Miransertib in Proteus Syndrome Trial What is Proteus Syndrome. Contact Registry Get Involved Parents Clinical Trials Donate Donate Follow Us . .
Nemoci, poruchy a lékařské disciplíny jinde neuvedené. Zdraví - Obecné a Rehabilitační N.E.C. Ostatní lékařský výzkum j. n. (jiné než specifikované)
