EAST DEVON CYSTIC FIBROSIS QUALITY OF LIFE FUND
East Devon Cystic Fibrosis EDCF - Quality Of Life Fund Charity
1119957
2007
EX8 4JX
edcf.org.uk
East Devon Cystic Fibrosis Quality of Life Fund
The East Devon Cystic Fibrosis Quality of Life Fund is a registered UK charity focused on improving the quality of life for individuals living with cystic fibrosis, particularly in the East Devon area.
Background
Cystic fibrosis is the UK's most common life-threatening inherited disease, affecting over 8,000 people in the UK[2]. Given this context, the charity plays a crucial role in providing support to those affected by this condition.
Purpose and Activities
The charity's primary purpose is to enhance the quality of life for individuals with cystic fibrosis through various forms of support. It organizes fundraising activities, which have included significant events like the South West Coastal Path Walk in 2006 and 2008, and a River Boat Trip[3]. These efforts help generate resources that can be used to provide financial assistance and other forms of support to those in need.
Registration and Governance
The East Devon Cystic Fibrosis Quality of Life Fund was registered as a charity on July 5, 2007. It is recognized by HMRC for Gift Aid purposes, which allows the charity to claim additional funds from donations made by UK taxpayers[4].
Financial Support
The charity offers financial support to individuals with cystic fibrosis, often coordinating through local platforms to reach those who might benefit from their assistance[5]. This support is crucial for helping manage the daily challenges faced by people living with cystic fibrosis.
[1] https://www.edcf.org.uk [2] https://www.edcf.org.uk/about/what-is-cystic-fibrosis/ [3] https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/4032418 [4] https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/4032418/governance [5] https://exetercfcentre.co.uk/financial-support/
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Poslední komentáře
❤️ This is such an important cause! Thank you to all the parents and volunteers working tirelessly to improve the lives of those affected by Cystic Fibrosis in East Devon. Every bit helps!detail |
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🌟 Amazing work being done by the East Devon Cystic Fibrosis Quality of Life Fund! Let’s come together to support this initiative and make a real difference for families in our community!detail |
Poslední diskuze
1. What innovative programs or activities can we implement to further enhance the quality of life for individuals with Cystic Fibrosis in the East Devon area?Odpovědí: 3, Naposledy před 1 den detail |
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2. How can we better engage the local community and raise awareness about Cystic Fibrosis and the support needed for families affected by this disease?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
EX8 4JX
O společnosti
- E60, E30, G30 -
Speech given by Dr Simon Robertson. CF Trust Newsletter Contact Express and Echo article 020707 South West Coast Path Challenge 200. The Quality of Life Fund has been set up by a group of parents all of whom have children with the life threatening disease Cystic Fibrosis. The EDCF fund has been created to help people with Cystic Fibrosis who live in the East Devon area to enhance their quality of life.
Zdravotnické podpůrné služby Zdravotnická léčebná zařízení (převážně ambulantní) Rakovina
