THE GEORGE PANTZIARKA TP53 TRUST
The George Pantziarka TP53 Trust
We are the George Pantziarka TP53 Trust - the UK advocacy group for Li Fraumeni Syndrome Supporting research into Li Fraumeni Syndrome (LFS) and related conditions. Publishing information leaflets and web site; hosting conferences for sufferers of LFS and related conditions. Hosting an online forum for individuals and families with LFS. Raising awareness of LFS and related conditions through social media and other channels.
1157167
IČO
2014
Založeno
KT1 2JP
Adresa
tp53.co.uk
Web
GPTP53
Facebook (678)
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Podobně sociální sítě (678)
Více Nemoci, poruchy a lékařské disciplíny jinde neuvedené.
Novinky
Poslední komentáře
Thank you for all the incredible work you're doing to support families affected by Li Fraumeni Syndrome. Your dedication to raising awareness and advancing research is truly inspiring! 💙detail |
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So grateful for the resources and support provided by the George Pantziarka TP53 Trust! Together, we can make a real difference for those impacted by LFS. Keep up the amazing work! 🌟detail |
Poslední diskuze
- What strategies can NGOs implement to raise awareness about Li Fraumeni Syndrome and its impact on families?Odpovědí: 3, Naposledy před 1 den detail |
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- How can collaboration between advocacy groups, researchers, and healthcare providers enhance support for individuals with LFS?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
Reviews
KT1 2JP
Místo
O společnosti
- G99, E20, G30 -
LFS UK 2024 Conference Presentations Now Online. Welcome The George Pantziarka TP53 Trust is the UKs only charity dedicated to supporting families with Li Fraumeni Syndrome and related conditions. It offers practical support and advice publishes information for patients and doctors alike and is dedicated to making a difference with research. Where most research is devoted to understanding the disease the Trust is aiming to move forward with research on how to reduce the massive cancer risks that blight the lives of LFS families.
Nemoci, poruchy a lékařské disciplíny jinde neuvedené. Nemocnice a zařízení primární zdravotní péče Rakovina
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