Crescent Kids

Crescent Kids provides advice and guidance for children and families suffering with sickle cell. Our activities include: - Yearly patient / parent focus groups - Fundraising initiatives- Collaboration with children charities responsible for well being of pediatrics in hospital admission - Research into new and innovative therapies for the treatment of sickle cell
1173388
IČO
2017
Založeno
NW1 0JH
Adresa
crescentkids.org
Web
3752496
Návštěvnost
Popis

Crescent Kids

Crescent Kids is a UK-based nonprofit organisation focused on improving the quality of life for children affected by Sickle Cell disease. Registered as a charity with the number 1173388, Crescent Kids aims to enhance medical care and support for these children.

Objectives

The charity's main goals are to provide advice and guidance for children and families dealing with sickle cell disease and to work towards reducing pain episodes experienced by millions of children worldwide[1][2]. They strive to increase awareness about the disease and improve healthcare outcomes.

Activities

Crescent Kids engages in several activities to achieve its objectives, including:

  • Awareness and Education: The charity uses fundraisers and social media to raise awareness about Sickle Cell disease. They offer online education on wellness, mindset, and pain management[4].
  • Support Network: Crescent Kids has established a support network for individuals with Sickle Cell disease and their carers[4].
  • Care and Wellness Packs: They create care and wellness packs to support affected families[4].

Projects and Collaborations

Eli Health App

Crescent Kids developed the Eli Health App, designed specifically for children with Sickle Cell disease and their carers. The app facilitates symptom tracking, provides health reminders, and allows reporting to healthcare professionals. It has been selected for the NHS Clinical Entrepreneur programme[4].

CARES Research Project

The charity is co-leading the CARES Research project in collaboration with the UCL Great Ormond Street Institute of Child Health and the NIHR. This research focuses on understanding the health and educational outcomes of every child in England with Sickle Cell disease, aiming to assess how the disease impacts their quality of life[3][4].

Impact and Reach

Crescent Kids has expanded globally, with followers and team members across the world. Their efforts have helped establish a strong support system for those affected by Sickle Cell disease[4].

[1] https://crescentkids.org [2] https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/5066971/charity-overview [3] https://crescentkids.org/cares-research/ [4] https://vac.org.uk/charity-spotlight/charity-spotlight-crescent-kids/ [5] https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/5066971/full-print

Více

Poslední komentáře

What an incredible initiative! Every child deserves a chance at a pain-free life, and it's heartwarming to see Crescent Kids making such a profound impact. Let's spread the word and support this amazing cause! ❤️🌍
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It's so inspiring to see organizations like Crescent Kids working tirelessly to help children with sickle cell and thalassemia. Together, we can bring hope and healing to those in need! 🤝💙
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Poslední diskuze

What strategies can be implemented to raise awareness about sickle cell and thalassemia among communities in Africa, and how can we engage local leaders in these efforts?
Odpovědí: 3, Naposledy před 1 den detail
How can technology be leveraged to improve access to medical care and resources for children with sickle cell and thalassemia in underprivileged areas?
Odpovědí: 3, Naposledy před 1 den detail

V okolí

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CRESCENT KIDS
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4.5
Reviews
NW1 0JH
Místo
O společnosti

- E99, G30, H99 -

Every child deserves a painfree life Do you have a child in need of medical care in Africa. Register here How we help. Crescent Kids works to raise funds to provide research and funds for children with sickle cell and thalassemia. We are here to provide hope and a plan for a life without pain.

Zdraví - Obecné a Rehabilitační N.E.C. Rakovina Ostatní lékařský výzkum j. n. (jiné než specifikované)
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