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HME - The New Generation provides support forums for those affected by Hereditary Multiple Exostoses by way of a closed Facebook Group, Zoom get togethers and annual face-to-face meetings. We also organise occasional social events such as an on-line quiz night. The charity also provides information about the condition with material available to raise public awareness.
1186351
IČO
2019
Založeno
OX3 9HX
Adresa
hmetng.org.uk
Web
Podobné organizace
WILLIAMS SYNDROME FOUNDATION LIMITED |
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ICHTHYOSIS SUPPORT GROUP |
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HAEUK |
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PHELAN-MCDERMID SYNDROME FOUNDATION UK |
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DDX3X SUPPORT UK |
Podobné organizace global
Osteopetrosis Society Inc |
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Ellie White Foundation for Rare Genetic Disorders Inc |
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PERTHES KIDS FOUNDATION |
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4P-Support Group |
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United MSD Foundation |
Více Rakovina
Umění proti rakovině, z.s.Praha |
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Česká kooperativní skupina pro nádory hlavy a krku, z. s.Praha |
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Nadační fond Pink BubblePraha |
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Nadační fond pro protonovou terapiiPraha |
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Nadační fond ÚSMĚVPlzeň |
Novinky
Poslední komentáře
So grateful for the work HME - The New Generation is doing to support families affected by this rare condition. Let’s spread awareness and help each other navigate the challenges of HME! 💙detail |
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Kudos to HME for creating such a supportive community! Your efforts in organizing events and providing resources make a world of difference for those dealing with HME. Keep shining! 🌟detail |
Poslední diskuze
1. What strategies can we implement to raise awareness about Hereditary Multiple Exostoses (HME) in schools to reduce bullying and foster understanding among peers?Odpovědí: 3, Naposledy před 1 den detail |
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2. How can we improve support systems for families newly diagnosed with HME to help them cope with the challenges related to this condition?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
Reviews
OX3 9HX
Místo
O společnosti
- G30, E99, E50, G99 -
HME The New Generation Welcome. We are a UK based group offering active support for those affected by Hereditary Multiple Exostoses HME. HME is also known as Multiple Hereditary Exostoses MHE Multiple Osteochondroma MO Osteochondromatosis or Diaphyseal Aclasis. More about the disorder Hereditary Multiple Exostoses HME is a rare bone disorder in which people develop multiple cartilage capped bony lumps exostoses at the end of many bones especially the long bones of the arms and legs.
Rakovina Zdraví - Obecné a Rehabilitační N.E.C. Rehabilitační zdravotnické služby Nemoci, poruchy a lékařské disciplíny jinde neuvedené.
23 Vacancy
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