CURE CLCN4 LTD
Home - Cure CLCN4
We are a registered charity aimed at providing support, raising awareness and funding medical research for effective treatments for CLCN4. CLCN4 is a rare genetic condition that causes intellectual disability and other problems such as epilepsy, behavioural disorders, movement disorders and microcephaly.
1190344
IČO
2020
Založeno
W1U 3EH
Adresa
cureclcn4.org
Web
Podobné organizace
CILIOPATHY ALLIANCE |
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TIMOTHY SYNDROME ALLIANCE (TSA) |
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CURE INAD UK |
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MEF2C FOUNDATION |
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CURE4DM |
Podobné organizace global
Cloves Syndrome Community |
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Kcnq2 Cure Alliance Inc |
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COALITION TO CURE CHD2 INC |
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Cure Szt2 |
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Lcc Foundation Inc |
Více Nemoci, poruchy a lékařské disciplíny jinde neuvedené.
Novinky
Poslední komentáře
So excited for the upcoming Cure CLCN4 Scientific Conference! It's a fantastic way to unite families and share vital information about CLCN4. Let’s work together towards finding a cure! 🌟💙detail |
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Just downloaded the Welcome Pack and it’s filled with such helpful resources! Grateful for the efforts of the Cure CLCN4 team in supporting those affected by this condition. Together, we can make a difference! 🙌💖detail |
Poslední diskuze
1. What strategies can we implement to effectively raise awareness about CLCN4 among healthcare professionals and the general public?Odpovědí: 3, Naposledy před 1 den detail |
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2. How can families affected by CLCN4 better utilize the resources available through Cure CLCN4 to support their loved ones?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
Reviews
W1U 3EH
Místo
O společnosti
- G99, H99, E99, G30 -
Join us for the fourth installment of the Cure CLCN4 Scientific Conference on 19th 20th May 2025. Our brand new Welcome Pack is now available for download. This comprehensive booklet is filled with essential resources for families navigating life with CLCN4related condition Are you or a loved one living with CLCN4related condition. Click on the button below to join a familyonly private Facebook group and connect with other families going through the journey of a CLCN4 diagnosis Thanks to the fundraising efforts of the CLCN4 community and the work of the PHENOMINICS team two Clcn4 rat models are now available to researchers.
Nemoci, poruchy a lékařské disciplíny jinde neuvedené. Ostatní lékařský výzkum j. n. (jiné než specifikované) Zdraví - Obecné a Rehabilitační N.E.C. Rakovina
23 Vacancy
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