JOANNA RUTH BELL FOUNDATION
The Joanna Ruth Bell Foundation
JRBF focuses on helping people with Neurofibromatosis (NF) with a specific focus on Neurofibromatosis type 1 (NF1) in two main ways: 1) Advancing medical research and 2) providing support and assistance for projects and activities that directly aid and provide relief to individuals.
1207023
IČO
2024
Založeno
OX10 0DH
Adresa
joannaruthbellfoundation.org
Web
Podobné organizace
THE NEUROFIBROMATOSIS ASSOCIATION |
|
THE WORLD FEDERATION FOR NEURO-REHABILITATION |
|
JRC SIMPSON FOUNDATION |
|
CHILDHOOD TUMOUR TRUST |
|
CHARLOTTE'S BAG |
Podobné organizace global
NEUROFIBROMATOSIS INC |
|
Neurofibromatosis Incorporated Northeast |
|
Nf Team Foundation |
|
THE GIORGIO FOUNDATION |
|
Magical Mila Foundation |
Více Nemoci, poruchy a lékařské disciplíny jinde neuvedené.
Poslední komentáře
❤️ Joanna's story is truly inspiring! Thank you for shining a light on Neurofibromatosis and helping those who are affected. Together, we can make a difference! #JRBF #Hopedetail |
|
Every little bit helps! I'm proud to support the Joanna Ruth Bell Foundation and the vital work you do for those with NF1. Let’s spread awareness and compassion! 💪🌟 #SupportNF #MakeADifferencedetail |
Poslední diskuze
- What strategies can the Joanna Ruth Bell Foundation implement to raise awareness about Neurofibromatosis type 1 and its impact on women's health decisions, particularly regarding childbearing?Odpovědí: 3, Naposledy před 1 den detail |
|
- How can we improve support systems for families navigating the challenges of Neurofibromatosis type 1, particularly in terms of mental health and emotional well-being?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
Reviews
OX10 0DH
Místo
O společnosti
- G99, H99, G30, H30 -
Joannas Journey I just feel different than everyone else. As a child and early teen Joanna Bell began to show some physical and cognitiveabnormalities telltale signs of something much more insidious. In 2006 at the age of 16she was diagnosed with Neurofibromatosis type 1 NF1. This genetic multisystem disorderoccurs in approximately 1 in 3500 people and is most associated with peripheral nervetumors called neurofibromas often causing chronic pain.
Nemoci, poruchy a lékařské disciplíny jinde neuvedené. Ostatní lékařský výzkum j. n. (jiné než specifikované) Rakovina Výzkum rakoviny
23 Vacancy
More Detail
