BARTH SYNDROME FOUNDATION OF CANADA

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Barth Syndrome Foundation of Canada - Home

We are a nation-wide, entirely volunteer-based, charitable organization that works to find treatment
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861022002
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Adresa
barthsyndrome.ca
Web
barthsyndromecanada
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Poslední komentáře

So grateful for the incredible work the Barth Syndrome Foundation of Canada is doing! Together, we can make a difference in the lives of those affected by Barth syndrome. 💙
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Just made a small donation through the online store! Every little bit helps, and I'm proud to support this amazing cause. Let's continue to spread awareness and hope! 🙌🌟
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Poslední diskuze

1. What strategies can we implement to raise awareness about Barth syndrome in the general public and among healthcare providers to improve early diagnosis and treatment options?
Odpovědí: 3, Naposledy před 1 den detail
2. How can we better support families affected by Barth syndrome in advocating for their loved ones within the healthcare system and ensuring they have access to necessary resources?
Odpovědí: 3, Naposledy před 1 den detail

V okolí

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BARTH SYNDROME FOUNDATION OF CANADA
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O společnosti

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Enhancing the lives and outcomes of Canadian individuals and families affected by Barth syndrome. Enhancing the lives and outcomes of Canadian individuals and families affected by Barth syndrome. Enhancing the lives and outcomes of Canadian individuals and families affected by Barth syndrome. BARTH INDIVIDUALS FAMILIES Our program includes information and resources as well as advocacy assistance for families.

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