Canadian Association for Glycogen Storage Disease
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790607683
V7H2Y8
canadianagsd.org
Canadian Association for Glycogen Storage Disease
The Canadian Association for Glycogen Storage Disease is a nonprofit organisation dedicated to supporting individuals and families affected by Glycogen Storage Disease (GSD) in Canada. Established as a registered charity, its mission is multifaceted:
Mission and Objectives
- Information and Support: The organisation provides access to information about GSD, its consequences, and potential therapies.
- Research Support: It supports research aimed at developing diagnostic tests and therapies for GSD in Canada.
- Education and Awareness: It educates the healthcare community and the public about GSD to promote understanding and awareness.
Structure The Canadian Association for Glycogen Storage Disease is led by a Board of Directors and Officers, all of whom are volunteers. The organisation holds charity status with Revenue Canada under the business registration number 790607683RR0001.
Activities Beyond its core mission, the Canadian Association for Glycogen Storage Disease engages in various activities, including the promotion of clinical research and trials. It aims to facilitate connections among stakeholders, including patients, families, researchers, and healthcare professionals.
Importance Glycogen Storage Diseases are a group of rare genetic disorders characterized by the inability to regulate glycogen metabolism effectively. By supporting research and providing resources, the Canadian Association for Glycogen Storage Disease plays a crucial role in improving the lives of those affected by GSD in Canada.
[1] https://www.canadianagsd.org [2] https://ngobase.org/profile/366355 [3] https://rarediseases.org/organizations/association-for-glycogen-storage-disease-agsd/ [4] https://www.iamgsd.org/our-partners [5] https://www.ultrarareadvocacy.com/conditions-we-study/glycogen-storage-disease-type-ia-gsdia/
Podobné organizace
Podobné organizace global
Gist Support International |
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Society for Glycobiology |
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ASSOCIATION FOR GLYCOGEN STORAGE DISEASE |
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INTERNATIONAL SOCIETY FOR MANNOSIDO |
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CGD ASSOCIATION OF AMERICA INC |
Více Léčba duševního zdraví
AIM AT SUPPORT, z.ú.Česká Lípa |
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Spolek KOLUMBUSÚstí nad Labem |
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Masopust, z.s.Chomutov |
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Helias Ústí nad Labem, o.p.s.Ústí nad Labem |
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FOKUS Liberec o.p.s.Liberec |
Poslední komentáře
So grateful for the Canadian AGSD for creating a supportive community for families affected by GSD! Your efforts to spread awareness and provide crucial information are truly inspiring. 💙 #CureGSD #BeStrongStayStrongdetail |
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Thank you, Canadian AGSD, for your dedication to advancing research and helping those impacted by Glycogen Storage Disease! Together, we can make a difference. Let's keep spreading the word and supporting each other! 🙌 #GSDawarenessdetail |
Poslední diskuze
1. How can the Canadian Association for Glycogen Storage Disease enhance its outreach efforts to better educate the public and healthcare professionals about Glycogen Storage Disease and its impacts?Odpovědí: 3, Naposledy před 1 den detail |
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2. In what ways can individuals and families affected by GSD share their experiences and support each other through the CAGSD network?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
V7H2Y8
O společnosti
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Inform Connect Inspire Canadian Association for Glycogen Storage Disease QA Series Interviews GSD In The News AGSDs Around The World Become A Friend Of CAGSD GSD Related Websites Nutrition GSD Programs So What is GSD. and Frequently Asked Questions The Canadian Organization for Glycogen Storage DiseaseCanadianAGSD was created to help Canadian patients and their familiesaffected with this rare disease. Our purposes include providingindividuals affected with GSD and their families with access to information about the disease its consequences and potential therapiessupporting research which contributes to the development of diagnostic tests and therapies in Canada andeducating the health care community and the public about GSD . All of our purposes can be found in the Overview section.
Léčba duševního zdraví
