Australia Huntingtons Disease Association Qld Inc

Huntington's Australia

We provide information, advice, social connection activities, nonclinical counselling an support to access NDIS for people with Huntington's Disease and their families as well as education and training for service providers. Huntington' Disease (HD)is a rare degenerative, genetic neurological ithat causes significant loss of physical, cognitive and emotional function and eventually leads to death. Families impacted by HD often experience extensive social, financial and health/wellbeing disadvantage.
45130081598
IČO
huntingtonsqld.org.au
Web
Popis

Australia Huntingtons Disease Association Qld Inc

Introduction

The Australia Huntingtons Disease Association Qld Inc. (also known as Huntingtons Queensland) was a nonprofit organisation dedicated to providing support and welfare services to individuals and families affected by Huntington's disease in Queensland. The association operated as a key state-based entity prior to its integration into the national structure of Huntington's Australia.

History

Established in 1976, the association evolved from a small voluntary support group into a professional organisation offering a range of services. It aimed to improve the lives of those affected by Huntington's disease through information, counselling, advocacy, and welfare programs.

Mission and Services

The mission of the Australia Huntingtons Disease Association Qld Inc. was to offer comprehensive support to individuals and families impacted by Huntington's disease. The services included social support, health information, advocacy, education programs for health professionals, and respite care services. These initiatives were designed to enhance the quality of life for those living with the disease and their families.

Development and Change

Historically, the association played a crucial role in the development of specific facilities dedicated to Huntington's disease care. However, the landscape of Huntington's disease support in Australia has evolved significantly with the establishment of Huntington's Australia, which unified state and territory associations to create a more coordinated national response.

Closure and Integration

The Australia Huntingtons Disease Association Qld Inc. has undergone changes, and while it was once a standalone entity, its functions and support services are now integrated into the broader national framework provided by Huntington's Australia.

[1] https://qahda.com [2] https://huntingtonsaustralia.au [3] https://www.acnc.gov.au/charity/charities/f12c0678-38af-e811-a963-000d3ad244fd/history [4] https://qfinder2.health.qld.gov.au/HealthServiceProvider/Index/e15b1cf3-7637-e611-80d2-00505601056f [5] https://qahda.com/howtohelp.html

Více

Poslední komentáře

🌟 I'm so grateful for the incredible work the Australia Huntingtons Disease Association Qld Inc is doing! Your support and resources make such a difference for families facing this challenging journey. Keep shining a light on Huntington's disease! 💚
detail
🙌 Thank you for standing up for the Huntington's community! Your commitment to providing information and support is invaluable. Together, we can create awareness and make a positive impact on so many lives. #EndHuntingtons 💙
detail

Poslední diskuze

What strategies can be implemented to raise awareness about Huntington's Disease in local communities, and how can NGOs effectively engage with those impacted by the condition?
Odpovědí: 3, Naposledy před 1 den detail
In what ways can technology and online platforms enhance support services for individuals and families affected by Huntington's Disease?
Odpovědí: 3, Naposledy před 1 den detail

V okolí

Kontaktovat
Australia Huntingtons Disease Association Qld Inc logo
Australia Huntingtons Disease Association Qld Inc
+ Sledovat
4.5
Reviews
Místo
O společnosti

- E70, G20 -

Huntingtons Australia HA is the peak national body dedicated to supporting individuals and families impacted by Huntingtons disease HD across Australia. Established in October 2023 through the unification of five state and territory associations HA now provides a stronger more coordinated voice for the HD community. We offer a wide range of services to improve the quality of life for those impacted by HD including What is Huntingtons Disease. Huntingtons disease HD is an inherited degenerative neurological condition affecting the brain and central nervous system.

Programy veřejného zdraví Vrozené vady, genetická onemocnění
23 Vacancy More Detail