Huntington's NSW & ACT Incorporated

Huntington's NSW & ACT Incorporated was a nonprofit organization dedicated to supporting individuals and families affected by Huntington's Disease in New South Wales and the Australian Capital Territory. Established in 1975 as a part of the Australian Huntington's Disease Association, it aimed to provide support and educational programs for those impacted by the disease.

Mission and Activities

The organization focused on developing comprehensive support services to assist individuals with Huntington's Disease and their families. These efforts included:

• Educational Programs: Designed to help families understand and manage the disease.
• Support Services: Provided resources and assistance to cope with the emotional and physical challenges of Huntington's Disease.
• Advocacy: Served as a voice for families affected by the disease, advocating for improved care and awareness.

Status

As of June 2024, Huntington's NSW & ACT Incorporated is no longer registered and has ceased operations. This change reflects a broader restructuring within the Huntington's disease support landscape in Australia, which has led to the formation of Huntington's Australia, a unified national body aimed at providing more coordinated support across the country[1][4].

Legacy

Despite its dissolution, the work of Huntington's NSW & ACT Incorporated remains crucial in highlighting the importance of specialized support for Huntington's Disease. Its contributions to raising awareness and providing essential services have paved the way for ongoing advocacy and support in the region.

[1] https://huntingtonsaustralia.au [2] https://www.acnc.gov.au/charity/charities/6732f532-38af-e811-a962-000d3ad24a0d [3] https://www.dwdnsw.org.au/huntington_s_nsw [4] https://abr.business.gov.au/ABN/View/54571730306 [5] https://www.healthdirect.gov.au/australian-health-services/healthcare-service/west-ryde-2114-nsw/huntington-s-nsw/neurology/3b11c826-d52f-cc9e-0514-3c9a95230c95