Friedreich Ataxia Research Association

fara Australia

Our fundraising activities throughout the year enabled us to raise income to invest $220,000 in seven peer reviewed Friedreich Ataxia research projects. Providing grants for these projects in in line with our mission to invest in promising research, in the hope to find better treatments and ultimately a cure for Friedreich Ataxia.
74156394973
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VIC 3185
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fara.org.au
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Poslední komentáře

💖 So inspired by the incredible work being done by the Friedreich Ataxia Research Association! Every step towards better treatments and a possible cure gives hope to so many. Can't wait for the Melbourne Cocktail Fundraiser! 🥂✨ #HopeForFA #TogetherWeCan
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🌟 It's amazing to see SKYCLARYS making waves in the fight against Friedreich Ataxia! Let's keep supporting research and raise awareness. Join us at the fundraiser for a night to remember! 💪🎉 #FriedreichAtaxia #FindACure
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Poslední diskuze

1. How can the Friedreich Ataxia Research Association further support families and individuals affected by Friedreich Ataxia beyond fundraising events?
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2. What role do you think community engagement plays in advancing research and awareness for rare diseases like Friedreich Ataxia?
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VIC 3185
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O společnosti

- H20, H40 -

Imagine being a child or a teenager and being told you have a degenerative muscle disease which will lead to a loss of muscle coordination fatigue vision impairment hearing loss slurred speech and then a serious heart condition this is Friedreich Ataxia. 1 in every 30000 affected. 1 in 90 are carriers. There is currently no cure.

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