Fragile X Alliance Inc.

Fragile X Alliance – The Fragile X Alliance Inc is a non-profit organisation whose mission statement is to promote education and research into fragile X syndrome

The Fragile X Alliance Inc is a nonprofit organisation whose mission statement is to promote education and research into Fragile X syndrome, as well as disseminated information and new findings about Fragile X syndrome. Specifically, FXA Inc offers clinical services and educational resources. In addition to this, we are strongly involved in research projects aimed at improving care and understanding of FXS.
78965364337
IČO
VIC 3161
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fragilex.com.au
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Poslední komentáře

So grateful for the incredible work Fragile X Alliance Inc. is doing to support individuals and families affected by Fragile X syndrome! Your commitment to education and research is truly inspiring! 💙 #FragileXAlliance
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Kudos to the team at Fragile X Alliance Clinic for providing essential services and resources for those impacted by Fragile X syndrome! Together, we can make a difference and promote a better understanding of this condition! 🙌✨ #SupportAndEducate
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Poslední diskuze

1. How can community support initiatives be enhanced to better assist families affected by fragile X syndrome in accessing resources and educational opportunities?
Odpovědí: 3, Naposledy před 1 den detail
2. What role do advancements in genetic research play in the future of therapies and support for individuals with fragile X syndrome?
Odpovědí: 3, Naposledy před 1 den detail

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VIC 3161
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O společnosti

- E70, G20, H20 -

The Fragile X Alliance Clinic The Fragile X Alliance Clinic The Fragile X Alliance Inc is a nonprofit organisation whose mission statement is to promote education and research as well as disseminate information and new findings about fragile X syndrome. The Fragile X Alliance Clinic was established in April 1998 to meet the specific needs of affected individuals their families and thre carers. We have now seen over 400 children and adults of all ages with either the full or premutation throughout Australia New Zealand. For children the emphasis is on identifying the educational behavioural and support options that will enhance family life and optimise the childs abilities.

Programy veřejného zdraví Vrozené vady, genetická onemocnění Výzkum vrozených vad a genetických onemocnění
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