Huntington's Wa (Inc)
Huntington's Australia
82219251765
huntingtonswa.org.au
Huntington's WA (Inc)
Huntington's WA (Inc) is a nonprofit organization dedicated to supporting individuals and families affected by Huntington's disease in Western Australia. The organization focuses on providing the best possible health and wellbeing outcomes for those impacted by the disease.
Purpose and Services
Huntington's WA aims to enable optimal health and wellbeing through various services, including:
- Education: Providing information about Huntington's disease to help individuals and families understand and manage the condition.
- Information: Supplying resources and data on the disease to support informed decision-making.
- Advocacy: Advocating for the rights and needs of those affected by Huntington's disease to ensure they receive appropriate support and services.
- Support Services: Offering support and guidance to individuals and families dealing with the challenges of the disease.
Background on Huntington's Disease
Huntington's disease is a progressive neurological disorder affecting the brain and central nervous system. It is inherited and leads to a decline in mental and physical abilities, ultimately resulting in significant impairment and mortality.
Role in the Community
As part of the broader efforts to address Huntington's disease in Australia, organizations like Huntington's WA play a crucial role in raising awareness and providing community support. Their work contributes to national initiatives through collaboration with other state and national bodies, such as Huntington's Australia, which was formed in October 2023 to unify support services across the country.
Nonprofit Status
Huntington's WA operates as a registered nonprofit organization, relying on donations and support from the community to continue its services. The organization's work is guided by a commitment to improving the lives of those affected by Huntington's disease through compassion and advocacy.
[1] https://huntingtonsaustralia.au [2] https://connectgroups.org.au/directory/listing/huntingtons-wa-inc [3] https://www.acnc.gov.au/charity/charities/7900d21a-38af-e811-a960-000d3ad24282/documents/b588a340-9c74-ee11-8179-00224893d32a [4] https://huntingtonsaustralia.au/about/ [5] https://www.healthdirect.gov.au/australian-health-services/healthcare-service/nedlands-6009-wa/huntington-s-wa-inc/patient-advocacy-and-liaison/e200a87d-b7fc-59df-54f1-b1160f47c895
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Více Vrozené vady, genetická onemocnění
Poslední komentáře
So proud of Huntington's WA for creating such a strong community and providing crucial support for those impacted by Huntington's disease! 🙌💙detail |
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Let’s come together to raise awareness and help make a difference for families affected by HD. Every little bit counts! 🌟 #HuntingtonsAwarenessdetail |
Poslední diskuze
1. What are some effective strategies for raising awareness about Huntington's disease in local communities, and how can NGOs like Huntington's Australia engage with these communities more effectively?Odpovědí: 3, Naposledy před 1 den detail |
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2. How can we better support caregivers and families of individuals impacted by Huntington's disease, and what additional resources or services could be beneficial in this regard?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
O společnosti
- G20, G90 -
Huntingtons Australia HA is the peak national body dedicated to supporting individuals and families impacted by Huntingtons disease HD across Australia. Established in October 2023 through the unification of five state and territory associations HA now provides a stronger more coordinated voice for the HD community. We offer a wide range of services to improve the quality of life for those impacted by HD including What is Huntingtons Disease. Huntingtons disease HD is an inherited degenerative neurological condition affecting the brain and central nervous system.
Vrozené vady, genetická onemocnění Lékařské disciplíny
