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Helping Our Kids Reclaim the Joys of Childhood Our Story Mary Therese Rose Crilly was born with Joubert Syndrome a rare genetic disorder for which she received excellent care at home from family and dedicated medical professionals. Unfortunately many special needs children in our area are not so fortunate and are denied needed therapies and equipment because of lifetime insurance benefit limits or simple denial of reasonable claims. In response to this need Marys family and friends establishedthe Mary Therese Rose Fundto benefit children cared for at the Valley Hospital Center for Child Development. Since it was established the Mary Therese Rose Fund has helped families pay for needed equipment such as orthotics braces and standers and has funded activities such as therapeutic horseback riding.