Spinal Muscular Atrophy Foundation

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The mission of the Spinal Muscular Atrophy Foundation is to accelerate the development of a treatment for SMA, the number one genetic killer of infants and toddlers.
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So sorry to hear about the passing of Steve Mikita. His dedication to the SMA Foundation and the fight against this devastating disease will always be remembered. ❤️
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Thank you to everyone involved in the SMA Foundation for your tireless work! Together, we can make a difference and bring hope to families affected by Spinal Muscular Atrophy. 💪✨
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Poslední diskuze

1. What innovative fundraising strategies have you seen that could help the Spinal Muscular Atrophy Foundation further its mission in light of recent advancements in treatment?
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2. How can we better engage and support families affected by Spinal Muscular Atrophy in the clinical trial process, ensuring their voices are heard and needs are met?
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The mission of the Spinal Muscular Atrophy Foundation is to accelerate the development of treatments for SMA. Spinal Muscular Atrophy is the leading genetic cause of death in young children. 1 in 50 people are carriers of the disease. Three FDA approved drugs are now available.

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