SMA Foundation | Home
The mission of the Spinal Muscular Atrophy Foundation is to accelerate the development of a treatment for SMA, the number one genetic killer of infants and toddlers.
10759380
IČO
smafoundation.org
Web
2602550
Návštěvnost
Podobné organizace
Cure SMA |
|
Joshua Joel Sma Life Foundation |
|
Cole Parker Randall Foundation |
|
LIVE RHYSSTRONG FOUNDATION |
|
SPINAL MUSCULAR ATROPHY RESEARCH TEAM |
Podobné organizace global
Spinal Muscular Atrophy UK |
|
Love For Lewiston Foundation |
|
CURE SMA CANADA SOCIETY |
|
The Gillin Boys Foundation Muscular Dystrophy Awareness Warrnambool Inc |
|
Save Our Sons Ltd |
Více z
50. rovnoběžka z.s. |
|
7 DNÍ, z. s. |
|
7SEAL JUDICIAL z.s. "v likvidaci" |
|
7x7 z.s. |
|
777 Racing Team z.s. |
Podobná návštěvnost
Svaz českých fotografů,z.s. |
|
OBRAZ - Obránci zvířat, z. s. |
|
PORG International School, z.ú. |
|
Muzeum přírody Český ráj z. s. |
|
Hnutí Pro život ČR, z.s. |
Více Vzdělávání n.e.c. (jiné vzdělávání)
GO-ED!, z.s. |
|
Institut moderní pedagogiky, z.ú. |
|
KATČENKA z. s. |
|
Kytaristi z Parku, z. s. |
|
Na křídlech z. s. |
Poslední komentáře
So sorry to hear about the passing of Steve Mikita. His dedication to the SMA Foundation and the fight against this devastating disease will always be remembered. ❤️detail |
|
Thank you to everyone involved in the SMA Foundation for your tireless work! Together, we can make a difference and bring hope to families affected by Spinal Muscular Atrophy. 💪✨detail |
Poslední diskuze
1. What innovative fundraising strategies have you seen that could help the Spinal Muscular Atrophy Foundation further its mission in light of recent advancements in treatment?Odpovědí: 3, Naposledy před 1 den detail |
|
2. How can we better engage and support families affected by Spinal Muscular Atrophy in the clinical trial process, ensuring their voices are heard and needs are met?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
Reviews
Místo
O společnosti
- B99 -
The mission of the Spinal Muscular Atrophy Foundation is to accelerate the development of treatments for SMA. Spinal Muscular Atrophy is the leading genetic cause of death in young children. 1 in 50 people are carriers of the disease. Three FDA approved drugs are now available.
Vzdělávání n.e.c. (jiné vzdělávání)
23 Vacancy
More Detail