Chris Carrino Foundation for Fshd Inc
The Chris Carrino Foundation for FSHD | Dedicated To Finding A Cure For FSHD
263424190
2008
Albertson, NY 11507 USA
chriscarrinofoundation.org
carrinoFSHD
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Novinky
Your donations at work: DUX in a row: Exploring genetic repression across the D4Z4 repeat | Fred Hutchinson Cancer Center https://t.co/ddioVzDufz (tw)
Epicrispr Biotechnologies Doses First Patient in First-in-Human Clinical Trial of EPI-321 for Facioscapulohumeral Muscular Dystrophy https://t.co/vsSCHVHBxY (tw)
Poslední komentáře
So inspired by the work the Chris Carrino Foundation is doing to fight FSHD! Together, we can make a difference and bring hope to those affected. 💪❤️ #CureFSHDdetail |
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Kudos to Chris and the team for highlighting FSHD on Capitol Hill! Advocacy is so important in raising awareness and pushing for research funding. Let's keep the momentum going! 🙌 #FSHDawarenessdetail |
Poslední diskuze
What initiatives could we explore to enhance community awareness and support for individuals affected by FSHD?Odpovědí: 3, Naposledy před 1 den detail |
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How can we better collaborate with research institutions to accelerate the development of effective treatments for FSHD?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
Albertson
O společnosti
- DFu -
About What Is FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY FSHD. LEARN ABOUT FSHD A Voice for Facioscapulohumeral Muscular Dystrophy FSHD The Chris Carrino Foundation for FSHD is a 501c3 nonprofit organization working towards improving the lives of those affected by Facioscapulohumeral Muscular Dystrophy FSHD. We are an independent volunteer foundation providing funding to research scientists in the hope that stimulating scientific research in the field of FSHD will lead to an effective treatment and eventually a cure. We would love to hear from you.
