National Scleroderma Foundation
411802254
Apple Valley, MN 55124 USA
scleroderma.org
SclerodermaUS
530103
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Novinky
📍Capitol Hill | Hill Day 2025 Our scleroderma advocates are on the Hill today, meeting with lawmakers to elevate the voices of those living with scleroderma. As part of Hill Day with the Coalition of Skin Diseases, we're grateful for this partnership that amplifies our call for increased research funding, improved access to care, and stronger federal support. Real change starts with advocacy, and these champions are leading the way. 💙 #SclerodermaAwareness #HillDay #CoalitionOfSkinDiseases (fb)
Your voice can spark change. 💙 Every June, we unite to raise awareness for scleroderma - but we can’t do it alone. One powerful way to make a difference? Request a proclamation from your local or state government declaring June as Scleroderma Awareness Month. These proclamations do more than make headlines, they start conversations, inspire action, and let thousands of individuals living with scleroderma know they are seen, heard, and supported. ✅ Ready to be an advocate in your community? Get the tools you need to request a proclamation here: https://scleroderma.org/2025-scleroderma-awareness-month/ #NationalSclerodermaFoundation #Proclamation #Advocacy (fb)
Poslední komentáře
❤️ So inspired by the amazing work the Scleroderma Foundation Minnesota Chapter is doing! Together, we can make a difference for all those affected by this condition! #SclerodermaAwarenessdetail |
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Let's keep pushing for a cure and supporting each other on this journey! Grateful for everyone involved in the fight against scleroderma. 💪💙 #TogetherWeCandetail |
Poslední diskuze
- How can we better support families and caregivers who are affected by scleroderma to ensure they have the resources they need?Odpovědí: 3, Naposledy před 1 den detail |
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- What innovative fundraising ideas could we implement to raise awareness and funds for scleroderma research and community support?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
Apple Valley
O společnosti
- B99 -
National Scleroderma Foundation Where to Start More than 300000 Americans live with some type of scleroderma. Today the face of scleroderma includes people of all ages genders and backgrounds. Scleroderma can affect young parents children grandparents and teenagers. Thanks to the passion and dedication of countless volunteers scientists and supporters were advancing our mission faster than ever.
Vzdělávání n.e.c. (jiné vzdělávání)