National Gaucher Foundation
521350226
1984
Rockville, MD 20852 USA
gaucherdisease.org
nationalgaucherfoundation
1296749
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Podobně sociální sítě (3000)
Novinky
The U.S. Food and Drug Administration (FDA) approved the first oral SRT medication for Gaucher disease in 2003. The currently approved drugs, Cerdelga® (eliglustat) and Zavesca® (miglustat), act differently in the body and are only approved for use in certain patients. If you are eligible to receive SRT, a Gaucher specialist can help you identify which medication is right for you. (fb)
Emotional resilience – also called emotional agility – is the ability to bounce back emotionally from stressful situations. Everyone can be resilient, and there are skills and exercises you can use to foster that ability. (fb)
Poslední komentáře
What an incredible organization! Thank you, National Gaucher Foundation, for your ongoing commitment to supporting patients and their families. Together, we can make a difference! 💙💪detail |
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So grateful for the resources and support that NGF provides for those affected by Gaucher disease. Let's keep spreading awareness and helping those in need! 🌟 #GaucherAwarenessdetail |
Poslední diskuze
1. How can the National Gaucher Foundation further enhance collaboration with medical professionals to improve treatment outcomes for patients?Odpovědí: 3, Naposledy před 1 den detail |
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2. What innovative educational programming initiatives could NGF implement to better empower Gaucher patients and their families?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
2
4.5
Rockville
O společnosti
- 301, E12, G80, G01 -
Living a better today We empower Gaucher patients through financial support educational programming patient services and collaboration with medical professionals. Find Resources Support More Find A Treatment Center Explore treatment centers and find Gaucher specialists across the country. COVID19 Precautions for Gaucher Patients Get the facts about COVID19 discover how Gaucher diseases impacts your risk and learn what you can do to protect yourself and others. Make an impact in the lives of those who have Gaucher disease.
Shromažďování finančních prostředků a/nebo distribuce finančních prostředků. Konkrétně pojmenované nemoci Alianční/advokační organizace