We are trying to set up the 2019 Patients' Meeting for October 25th, 26th in Indianapolis, IN. There is a Doodle poll active to see if you wish to come and are available. (The dates made earlier in consideration that Indianapolis gets cold sooner than Myrtle Beach.) As usual, OPETS will pay for Friday night if you are coming to the meeting, but has added Thursday night for those involved in testing. If you are interested in attending, send an email to patrick@osteopetrosis.org so I email you an explanation about that, please read it for details. Of course, there is no obligation, or tie to any other purpose. Whether the answer is yes or no, we really would appreciate hearing from you. https://doodle.com/poll/269d3aun45vvhws4 Please add a comment to provide some helpful detail like "25+26", "25 only", "26 only", "dates don't work for me" (fb)

From the time we just started the first website (www.osteopetrosis.org) the message has been "You aren't alone in this." One of the first things many people said was "I thought I was the only one." Please start bringing people in your region together by saying what country or region you are from. (Not addresses, just a region) We all benefit from knowing that this is a condition that is found all over the globe. It's a part of the "human condition" that we share. You dont need to have a question or concern to post it. Just say something like: "I'm Pat from New Jersey, USA and I care about all of you with OPT out there." (fb)