PTEN Hamartoma Tumor Syndrome Foundation

Alianční/advokační organizace / Huntsville /

PTEN Foundation | PTEN Foundation

PTEN is a tumor suppressor gene. When mutated at birth a patient is at higher risk for many #cancers and #autism. our mission: treatments for PHTS, patient 1st We are working to accelerate PTEN research while educating the world about PTEN syndromes and supporting our patient community. https://linktr.ee/ptenfoundation The PTEN Hamartoma Tumor Syndrome Foundation was founded to find treatments or therapies for PTEN Syndromes by funding research, providing PHTS education, supporting patients, and by raising awareness. PHTS includes Cowden syndrome (CS), Bannayan-Riley-Ruvalcaba syndrome (BRRS), PTEN-related Proteus syndrome (PS), and Proteus-like syndrome.
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464279769
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Huntsville, AL 35806 USA
Adresa
ptenfoundation.org
Web
ptenfoundation
Twitter (1016)
ptenfoundation
Facebook (3500)

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Novinky

27 srp
PTEN Hamartoma Tumor Syndrome Foundation

The PTEN Hamartoma Tumor Syndrome Foundation Announces Major Research Grant Opportunity in Memory of Dr. Charis Eng! The grant offer is up to $135,000, Available over Three Years, to Support Critical PTEN Research. #pten #ptenresearch #hereditarycancer #autism #genetics (tw)

27 kvě
PTEN Hamartoma Tumor Syndrome Foundation

We will never forget the sacrifice they made for out freedom. #MemorialDay @followers (fb)

Poslední komentáře

💚 So proud to support the incredible work being done by the PTEN Foundation! Together, we can raise awareness and bring hope to those affected by PTEN syndromes. #PatientsFirst #PTENAwareness
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📢 Let's spread the word about the PTEN Hamartoma Tumor Syndrome Foundation! Every share brings us closer to understanding and treating these conditions. Check out the patient-powered registry and get involved! 🌟 #PHTS #TogetherWeCan
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Poslední diskuze

- What strategies can we implement to raise awareness about PTEN Hamartoma Tumor Syndrome (PHTS) and its related conditions within various communities?
Odpovědí: 3, Naposledy před 1 den detail
- How can patient-powered registries impact research funding and the development of treatments for genetic conditions like PHTS?
Odpovědí: 3, Naposledy před 1 den detail

V okolí

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PTEN Hamartoma Tumor Syndrome Foundation
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O společnosti

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PTEN Foundation The PTEN Hamartoma Tumor Syndrome Foundation was founded to find treatments or therapies for PTEN Syndromes by funding research providing PHTS education supporting patients and by raising awareness. PHTS includes Cowden syndrome CS BannayanRileyRuvalcaba syndrome BRRS PTENrelated Proteus syndrome PS and Proteuslike syndrome. Download our 2018 Brochure Today. PTEN Hamartoma Tumor Syndrome Foundation We are excited to bring you a patientpowered registry where research is driven by patients and their realworld experience.

Alianční/advokační organizace
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