MYOSITIS SUPPORT AND UNDERSTANDING ASSOCIATION
Myositis Support and Understanding, Patient-Centered Nonprofit
474570748
Lincoln, DE 19960 USA
understandingmyositis.org
myositissupport
understandingmyositis
2520594
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Novinky
Join us for "From the Heart" support TODAY on Clubhouse—a welcoming space for myositis patients and care partners. If you're feeling alone or just want to connect with those who truly understand, join us to listen or share your experiences with your #myositis family. 💙 Starting at 7 PM ET / 6 PM CT / 5 PM MT / 4 PM PT 👉 Don’t forget to join the Myositis Support Club on Clubhouse! Our rooms are private and accessible only to members. 👉 For more information, visit our event page: [Link in Bio] https://understandingmyositis.org/event/myositislife-clubhouse-support-room-2/2025-09-28/ Download the free Clubhouse app from your mobile app store to join in. #myositissupport #myositiswarriors #inflammatorymyopathy #supportcommunity #raredisease #autoimmunedisease #SupportStartsHere (fb)
🌟 Join us for Necrotizing Myopathy Support on Zoom TODAY and every last Saturday of the month! 🌟 Starting at 7 PM ET / 6 PM CT / 5 PM MT / 4 PM PT, this is a dedicated space for anyone living with necrotizing myopathy (IMNM/NAM). We come together to share laughter and tears in a welcoming, non-recorded environment. Feel free to join as you are—video is optional. What matters most is that you're there to both give and receive the real-time support you deserve. 💙 💥 For more details and to register, visit: https://understandingmyositis.org/event/imnm-video-support-2/2025-09-27/ #myositissupport #myositiswarriors #raredisease #communitysupport #MSU #IMNM #SupportStartsHere (fb)
Poslední komentáře
Thank you MSU for all the incredible support you provide to those battling myositis! Your commitment to education and empowerment truly makes a difference in our lives. 💜 #MyositisSupportdetail |
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So grateful for the resources and community you’ve built. Together, we can raise awareness and support each other in our journeys! 🌟 Let's keep spreading the word! #RareDisease #CommunityLovedetail |
Poslední diskuze
1. What strategies can we implement to raise awareness about myositis and its impact on patients' lives within our communities?Odpovědí: 3, Naposledy před 1 den detail |
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2. How can we enhance our financial assistance program to better serve myositis patients facing unexpected challenges?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
Lincoln
O společnosti
- 888, G99, G80, G99 -
Myositis Support Starts Here. At Myositis Support and Understanding MSU for the last 10 years we have been dedicated to making a profound impact on the lives of patients and care partners affected by the rare and complex group of immunemediated muscle diseases known as myositis. This condition can have farreaching effects impacting not only the muscles but also the skin heart lungs and digestive tract often accompanied by significant pain. Our organization offers a wide range of resources designed to support our community.
Nemoci, poruchy a lékařské disciplíny jinde neuvedené. Konkrétně pojmenované nemoci Nemoci, poruchy a lékařské disciplíny jinde neuvedené.
