🧬 Such an exciting advancement for AHC patients and researchers! ⭐️ We are thrilled to get to be a part of this historic research and to fund these research projects, alongside our friends at Hope for Annabel and AHC Kids Foundation. ❤️ Thank you to Dr. Cat Lutz and Markus Terrey for their incredible work at JAX and to Nina English Frost of Rare Hope for leading the AHC research team and working to advance patient-centered research and results. (fb)

📣 Calling all AHC patients and caregivers! Accessing the top AHC experts can be tricky. Barriers like finances, travel, and insurance sometimes make it difficult to be seen in person -- but we also know how extremely vital expert input can be for our patient community. We want to help. Simon Frost and Izzie Duval of Cure AHC are working on a project to increase access to the top AHC experts by bringing your questions to them. • What do you want to know? • What is keeping you awake at night? • What would you ask the experts if you could? Comment below with your questions OR to ask anonymously, you can ask here: https://tinyurl.com/asktheexpertscureahc (fb)