Home - aHUS Foundation
431934565
Penfield, NY 14526 United States
ahus.org
TheAtypicalHUSFoundation
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Podobně sociální sítě (2900)
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MDA RIDE z. s.Praha |
Novinky
🌟 Don’t miss your chance to join us at the 2025 aHUS Family Conference! 🌟 We’ve had a few cancellations, which means a handful of spots just opened up — and this is your opportunity to grab one! This year’s conference has something for everyone: yoga to start the day, inspiring talks from leading doctors and mental health speakers, a fun night out at Top Golf, and our can’t-miss music-themed party 🎶 It’s more than a conference — it’s a chance to connect, learn, and celebrate together. 💜 👉 Register now before these final spots are gone: https://tinyurl.com/3hrybvj3 (fb)
🚨 Last Chance! 🚨 Today is the very last day to register for our 2025 aHUS Conference! 💜 This is the only aHUS conference of the year—and it’s one you don’t want to miss. From powerful speakers to fun activities and unforgettable moments with fellow patients and families who truly understand—this gathering is full of learning, laughter, healing, and connection. ✨ Sign up today so you don’t lose your spot! 👉 https://tinyurl.com/3hrybvj3 Let’s make this 10th anniversary conference the most meaningful one yet. 💜 (fb)
Poslední komentáře
What an incredible mission! It's heartwarming to see a community come together to support families facing aHUS. Thank you for all the resources and inspiration you provide! 💙detail |
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I've learned so much from this foundation! The stories shared here truly uplift and empower families dealing with aHUS. Keep spreading hope and awareness! 🙌detail |
Poslední diskuze
1. What are some effective strategies for raising awareness about atypical hemolytic uremic syndrome (aHUS) within our communities?Odpovědí: 3, Naposledy před 1 den detail |
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2. How can we better support families navigating the emotional and logistical challenges of aHUS diagnosis and treatment?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
Penfield
O společnosti
- G12 -
The aHUS Foundation fosters sharing of informationand inspirationfor anyone looking to gain insight into atypical hemolytic uremic syndrome aHUS. We connect people with the resources and opportunities they need to help improve the lives of those dealing with this rare and complex disease. Learn More Weve Been There. Weve spent the evenings in hospitals worrying and bracing ourselves for the worst.
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