What is CLOVES Syndrome? CLOVES is an acronym for the list of common features associated with this ultra-rare, non-hereditary genetic syndrome: Congenital Lipomatous Overgrowth Vascular anomalies Epidermal nevi Scoliosis or Skeletal anomalies CLOVES Syndrome is the result of a mutation in the PIK3CA gene that occurred in utero. Because of this, it falls under an umbrella of conditions called PROS (PIK3CA Related Overgrowth Spectrum). There are very limited treatment options for people with PROS conditions and the treatments that do exist don’t work for everyone. CLOVES Syndrome Community is a 501(c)3 non-profit dedicated to improving the lives of those affected by CLOVES and PROS through support, education, and research. To learn more about our organization, vision for the future, and accomplishments so far, visit www.clovessyndrome.org . #RareDiseaseWarrior #ClovesSyndrome #PIK3CA #PIK3CARelatedOvergrowthSpectrum #CareForRare #ComplexMedicalNeeds #HopeIsInMyGenes #CLOVESirl #ClovesSyndromeCommunity #ClovesAwarenessDay (fb)

It's easy to forget just how many lives each and every one of us touch. In small ways, and in profound ones (and everything in between) humans thrive in an interconnected web of relationships and interactions. You're an integral part of that web—and of this community! Last year, we were able to help 20 families thanks to the support of our donors, and the generosity of this community. Thank you for your belief in our vision of an improved quality of life for those with CLOVES Syndrome through support, research, and education. We couldn't do all we do without you. For details on the impact this community helped create, see our Fiscal Year 2024-25 Impact Report: https://bit.ly/FY2024-25_ImpactReport . #RareDiseaseWarrior #ClovesSyndrome #PIK3CA #PIK3CARelatedOvergrowthSpectrum #CareForRare #ComplexMedicalNeeds #HopeIsInMyGenes #CLOVESirl #ClovesSyndromeCommunity #ClovesAwarenessDay (fb)