Learning is Hope.
521336903
1983
Rockville, MD 20850-1737 USA
aamds.org
aamdsif
aamds
952357
Podobné organizace
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Podobné organizace global
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M RIEWOLDT HOLDINGS LIMITED |
Podobná návštěvnost
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Pionýr, z. s. |
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České centrum pro investigativní žurnalistiku, o.p.s. |
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SK HAMR, z.s. |
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DOBNET, z.s. |
Podobně sociální sítě (19378)
Česká astronomická společnost20418 |
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Díky, že můžem, z. s.20260 |
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Penya Barcelonista Lleó de Dues Cues20558 |
Novinky
Hurry to Register! The AAMDSIF Bone Marrow Failure Symposium-Disease Updates and Health Equity will focus on new advances in pathophysiology, diagnosis, and clinical management of bone marrow failure diseases and hematopoietic stem cell transplantation. https://t.co/TKbeMVfMUD https://t.co/vgAX7hSFDB (tw)
HURRY to Register! "What is PNH?" starts at 9am EDT "Managing PNH Complications" starts at 10:15 EDT Register for these live webinars: https://t.co/iCFItOQBhL For only "What is PNH?" https://t.co/zwtxWZ0HFl For only "Managing PNH Complications" https://t.co/q3jsspfKgn #PNH https://t.co/MEITX9jTmq (tw)
Poslední komentáře
💖 Thank you AAMDSIF for being a beacon of hope for so many families! Your support and dedication are making a real difference in the lives of those affected by these challenges. Together, we can raise awareness and advocate for a cure! #CommunitySupport #Hopedetail |
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🙏 Grateful to the Aplastic Anemia and MDS International Foundation for the invaluable resources and support you provide! Your work empowers patients and families, bringing knowledge and strength during difficult times. Keep shining your light! #PatientAdvocacy #CureAplasticAnemiadetail |
Poslední diskuze
1. How can the Aplastic Anemia and MDS International Foundation enhance its outreach to underrepresented communities affected by bone marrow failure diseases?Odpovědí: 3, Naposledy před 1 den detail |
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2. What innovative research approaches do you think hold the most promise for developing new treatments for Aplastic Anemia and MDS?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
10
150
4.5
Rockville
O společnosti
- 301, G80, G01, H80 -
Subscribe Donate Aplastic Anemia and MDS International Foundation Serving the aplastic anemia myelodysplastic disease syndromes MDS paroxysmal nocturnal hemoglobinuria PNH and related bone marrow failure disease communities AAMDSIF empowers patients and their families invests in research that speeds the search for new treatments and potential cures promotes highquality care by educating healthcare providers and ensures our patients voices are heard through awareness and advocacy. Quick Links Resources for You Patient Education Research Patient Guides Find a Specialist AAMDSIF Events and Inspiration Patient and Family Conferences 2025 Kansas City Patient and Family Conference Friday April 25 2025 530pm March for Marrow and Community Fundraisers March for Marrow Texas 2025 Saturday April 5 2025 800am Stories of Hope Gouldsmith Family Pulls Together for Gabby Heather Gouldsmith Professional Conferences 2025 AAMDSIF Bone Marrow Failure Summit Translating Science to. March 6 2025 Online Library Webinars ASH 2024 Update Aplastic Anemia and PNH February 18 2025 Podcast Episodes Pediatric Nurse Finds her Way through Aplastic Anemia Treatment AAMDSIF Podcast for Patients Conference Materials 2024 Tampa Patient and Family Conference Saturday October 19 2024 730am Research Articles Treatment of lowerrisk myelodysplastic syndromes Originally published February 1 2025 Your Support Powers Our Community With over 17 years experience supporting and advocating for patients at the Aplastic Anemia and MDS International Foundation Ive seen firsthand how important community support is when facing the challenges of a rare disease. Every contribution enables AAMDSIF to continue providing free and accessible programs that strengthen our community.
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