ASSOCIATION FOR GLYCOGEN STORAGE DISEASE
Association for Glycogen Storage Disease - Home
421130450
Waterloo, IA 50702 USA
agsdus.org
AGSDus
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Novinky
Hey all, Drug trial update! Ultragenyx announced the initiation of a rolling submission of a Biologics License Application (BLA) to the U.S. FDA seeking approval for their investigational gene therapy for patients with GSDIa. They plan to complete the BLA submission in the fourth quarter of 2025. This graphic outlines the process and answers many questions that you may have. #Ultragenyx #glycogenstoragedisease (fb)
Great News ! all videos from our 2025 AGSD conference are now avaliable to watch on our youtube channel ! https://www.youtube.com/@AGSD-AGSD/videos?view=0&sort=dd&shelf_id=2 (fb)
Poslední komentáře
💚 It's so inspiring to see the community coming together for such an important cause! Let's raise awareness and support those affected by Glycogen Storage Disease. Every little bit counts! 💪✨detail |
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🌟 Proud to be part of an organization that truly cares for families impacted by GSD. Let's make a difference together—donate today and help spread the word! 🙌❤️detail |
Poslední diskuze
What are some effective strategies for raising awareness about Glycogen Storage Disease within local communities?Odpovědí: 3, Naposledy před 1 den detail |
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How can the AGSD enhance its support programs to better meet the needs of families affected by Glycogen Storage Disease?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
Waterloo
O společnosti
- G80 -
DONATE 2025 AGSD CONFERENCE INFO Mission The purpose of the Association for Glycogen Storage Disease shall be to protect and promote the best interests of all persons and families affected by Glycogen Storage Disease GSD to promote the establishment improvement and management of facilities for the treatment study education shelter recreation recuperation and other general benefit to GSDaffected persons to act as a vehicle of communication on GSDrelated matters to patients families professionals and the public and to act as a focus for scientific educational and charitable activities related to the disease. Purpose The Association for Glycogen Storage Disease AGSD is a parent and patient oriented support group that is advised by a group of experienced medical professionals. The AGSD was established in 1979 in order to create an organization which would be a focus for parents of and individuals with all types of GSD to communicate by We need your help Every dollar helps. Consider donating today.
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