Little Hercules Foundation

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We serve the rare disease community through access advocacy and good policy. Patients and families first. We serve the rare disease community through access advocacy. Patients and families first! Little Hercules Foundation works to improve the lives of those diagnosed with – and families facing – Duchenne Muscular Dystrophy through Advocacy, Awareness, Family Assistance and Funding Research.
461427334
IČO
2013
Založeno
DUBLIN, OH 43016 USA
Adresa
littleherculesfoundation.org
Web
LHF_EndDuchenne
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LittleHerculesFoundation
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Poslední komentáře

💖 Such an important mission! Together, we can bring hope and support to those affected by rare diseases. Every action counts! #LittleHerculesFoundation
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🌟 I'm proud to support the Little Hercules Foundation! Let's keep advocating for those who need our voice the most. Access to treatment should be a right, not a privilege! #RareDiseaseAwareness
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Poslední diskuze

1. What strategies can we implement to better advocate for faster drug approvals for the rare diseases community, considering the existing challenges?
Odpovědí: 3, Naposledy před 1 den detail
2. How can we effectively raise awareness about the daily struggles faced by families living with rare diseases, especially when many are unaware of the existence of these conditions?
Odpovědí: 3, Naposledy před 1 den detail

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There are 10000 recognized rare diseases. Only 5 have a treatment available. A rare disease as defined as affecting less than 200000 patients 70 of rare diseases start in childhood 72 of rare diseases are genetic With YOUR HELP we can ensure all rare disease patients get the care they deserve. OUR MISSION Little Hercules Foundation serves the rare disease community through access advocacy and policy to ensure all rare disease patients get access to medically necessary treatments and care.

Nemoci nervů, svalů a kostí. Nemoci nervů, svalů a kostí.
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