Pmd Foundation A New Jersey Non Profit Corporation
PMD Foundation
522336287
Marlton, NJ 08053 USA
pmdfoundation.org
_pmdfoundation
ThePmdFoundation
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Novinky
🧠Did you know... Doctors often use MRI scans to help diagnose PMD. On these scans, the brain shows low levels of myelin, the protective coating around nerves that helps them send signals. For babies under 1–2 years old, MRIs can be tricky. Since their brains are still developing, the scans may look mostly normal. But doctors can sometimes catch early changes that point to PMD or another leukodystrophy. Awareness of these early signs helps families get answers sooner. 💙 https://www.pmdfoundation.org/what-is-pmd-about (fb)
Do you have a resource that’s helped your family on their PMD journey? We’re always adding to our Resource Hub to make it easier for families to find doctors, equipment, and support. If you know something worth sharing, leave a comment or send us a DM! https://www.pmdfoundation.org/resources (fb)
Poslední komentáře
💙 Love what the PMD Foundation is doing! It's so important for families affected by Pelizaeus-Merzbacher Disease to have support and access to resources. Together, we can raise awareness and promote research! #PMD #FamilySupportdetail |
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🌟 So grateful for the PMD Foundation and their commitment to advocacy and education. Every story shared brings us closer to understanding and fighting this rare disease. Let’s keep the conversation going! #RareDisease #Awarenessdetail |
Poslední diskuze
What are some effective strategies for increasing public awareness about Pelizaeus-Merzbacher Disease and its impact on families?Odpovědí: 3, Naposledy před 1 den detail |
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How can we enhance collaboration between researchers, clinicians, and families to accelerate advancements in PMD research and treatment options?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
Marlton
O společnosti
- G80 -
Were collecting stories of families and people living with PMD PMLD. The PMD Foundation serves those affected by PMD through education research service and advocacy. Access our resources for families Share your story join our community view helpful information and much more. Were on the cutting edge of research Governments associations and scientists regularly access our repository of research.
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