Homepage
431492959
1988
Kansas City, MO 64188-8660 USA
vasculitisfoundation.org
VasculitisFoundation
1321917
Podobné organizace
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Podobné organizace global
ARTHRITIS CARE |
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VERSUS ARTHRITIS |
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Více z Kansas City
Agility Cítov, z.s. |
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H.C. Hřebci Cítov z.s. |
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Chasa Osová Bítýška, z. s. |
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Kolektiv Nesladim, z.s. |
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Myslivecký spolek Citonice |
Podobná návštěvnost
Česká obec sokolská |
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Tělocvičná jednota Sokol Kyjov |
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Autoklub České republiky |
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PARALELNÍ POLIS, z.s. |
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Auto*Mat, z.s. |
Podobně sociální sítě (14000)
Novinky
When you live with vasculitis, your identity is not lost. It is evolving. Embrace the journey of discovering who you are becoming. Hopefully, this helps some of you who needed to hear this today. 🤗 (fb)
Things you SHOULDN'T and SHOULD say to those with a chronic illness. 👇 Read below and share with your friends, loved ones, and colleagues. ❌ SHOULDN'T 👉 When will you be better? 👉 What surgery are you recovering from? 👉 You don’t seem sick. 👉 What do you do with all of your free time? 👉 You cancel too much. Let’s plan a get-together so you can actually come! 👉 You look fine to me! 👉 What did you do today? Wow only, hmmm... 👉 Have you tried... 👉 I get (x, y, z, symptom) too! ✅ Instead, you SHOULD try these: 👉 Ask "How are you doing at the moment?" (It could change if you ask them in ten minutes...) 👉 Say, "I can’t imagine what you go through, can I help in any way?" 👉 Talk about your favorite shows to power watch (some dislike the word binge as it is often associated with disordered eating, so keep this in mind). 👉 Do a little something extra to pump up the jam... introduce them to new music or a podcast they might love, or get them a funny book, piece of art, or card. 👉 Do something nice, like shovel the driveway or mow the lawn without being asked. Asking for help is one of the biggest hurdles, as people with vasculitis spend much of their day articulating their needs. 👉 MOST IMPORTANTLY: learn about their illness and *gasp* talk to them about it. It will mean the world to them! (fb)
Poslední komentáře
❤️ Thank you for all the amazing work you do to raise awareness about vasculitis! Together, we can make a difference in the lives of those affected. 💪 #VasculitisAwarenessdetail |
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🌟 Grateful for the support and resources provided by the Vasculitis Foundation. Let's continue to advocate for early diagnosis and better treatment options! 🙌 #SupportVasculitisdetail |
Poslední diskuze
1. What are some effective strategies for raising awareness about vasculitis in our communities to promote early diagnosis and understanding of the condition?Odpovědí: 3, Naposledy před 1 den detail |
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2. How can patients and caregivers of those with vasculitis best support one another, and what resources would you recommend for fostering these connections?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
7
200
4.5
Kansas City
O společnosti
- 941, G80, H80, G40 -
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