NNPDF – Supporting One Another. Supporting Our Community.

National Niemann-Pick Disease Foundation The NNPDF offers support and guidance to families and patients of those affected by Niemann-Pick Dise Mission: We are a non-profit group dedicated to supporting and empowering patients and families affected by Niemann-Pick disease through education, collaboration and research. Vision: We envision an enduring patient support community that embodies strength, hope and empathy for those affected by all Niemann-Pick Disease types. We believe deeply in the future of research that promotes clinical treatments with potential to improve patient quality of life and with intent to ultimately cure all Niemann-Pick Disease types.
351844264
IČO
1992
Založeno
Fort Atkinson, WI 53538-0049 USA
Adresa
nnpdf.org
Web
nnpdf
Twitter (482)
NNPDF
Facebook (1000)
2978381
Návštěvnost

Novinky

Poslední komentáře

Absolutely love the work you're doing at NNPDF! It's so important to raise awareness about Niemann-Pick disease and provide support to families. Together, we can make a difference! 💙
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Thank you, NNPDF, for being a beacon of hope for those affected by Niemann-Pick disease! Your dedication to education and research is inspiring. Let’s continue to support one another in this journey! 🌟
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Poslední diskuze

- How can we raise awareness about Niemann-Pick Disease in the broader community to improve early diagnosis and support for affected families?
Odpovědí: 3, Naposledy před 1 den detail
- What are some effective fundraising strategies that organizations like NNPDF can implement to enhance research funding and patient support services?
Odpovědí: 3, Naposledy před 1 den detail

V okolí

Kontaktovat
National Niemann-Pick Disease Foundation logo
National Niemann-Pick Disease Foundation
+ Sledovat
3
Employee
30
Volunteer
4.5
Reviews
Fort Atkinson
Místo
O společnosti

- G99 -

Supporting One Another. Supporting Our Community. Chances are you havent heard much about NiemannPick disease. Its a rare disease but maybe not as rare as we think as it is difficult to diagnose.

Nemoci, poruchy a lékařské disciplíny jinde neuvedené.
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